Peter Mansfield, M.R.I. Pioneer and Nobel Laureate, Dies at 83
Sometimes it's easy to forget that we are indebted to some of the pioneers in medicine who take a chance and create something
that will endure their lifetimes and help more people than they ever could have imagined!
Sir Peter Mansfield, whose
research led to the invention of MRI, died February 8, 2017.
While an MRI can't detect each and every possible cause
of pulsatile tinnitus, it can detect many of them. A number of people in our community, including Yours Truly, are pretty
glad Sir Mansfield was born!
Read more about Sir Peter Mansfield's amazing life and discoveries
here, from the New York Times.
"Peter Mansfield, M.R.I. Pioneer and Nobel Laureate, Dies at 83," New York Times, February 11, 2017. Sat, February 11, 2017 |
"Pulsatile Tinnitus: Differential Diagnosis and Radiological Work-Up"
Here is a
report to start off the new year! A few things to take away, which we already knew but are nicely laid out in the report:
*Over 70% of pulsatile tinnitus causes can be identified.
*High resolution machines should be used if possible.
single modality (test) can rule out every possible cause.
"Pulsatile Tinnitus: Differential Diagnosis and Radiological Work-Up," Pegge, S.A.H., Steens, S.C.A., Kunst, H.P.M. et al. Curr Radiol Rep (2017) 5: 5. doi:10.1007/s40134-017-0199-7 Tue, January 31, 2017 |
UCSF Pulsatile Tinnitus Research Study Survey
If you are a whoosher over the age of 18, please complete
THIS SURVEY put together by doctors at the UCSF Pulsatile Tinnitus Clinic. It only takes about 10 minutes!
From the survey page:
We are conducting this survey to better understand
the impact that pulsatile tinnitus has on people's lives in terms of depression, anxiety, and function. We hope that this
information will help guide us in terms of providing better care for our patients and raising awareness of pulsatile tinnitus
as an illness.
Sat, December 3, 2016 |
SleepPhones Holiday Sale!
Use code SILENTNIGHT for 25% off US orders of $50 or more. Includes free shipping. Using this link your order will
provide a portion of proceeds to our Whooshers.com community! Good through Friday, December 2, 2016!
Sun, November 27, 2016 |
Pulsatile Tinnitus Publicity: "A Quest to Explain the Whooshing in Her Head"
This story was also picked up by PBSNewsHour.
Great publicity for our community and for our new pulsatile tinnitus medical codes.
Sat, October 29, 2016 |
Finally! Announcing the New, Official ICD-10-CM Pulsatile Tinnitus Diagnosis Codes!
Many of you
signed our petition for a formal pulsatile tinnitus diagnosis code. Well, our community has been heard! H93.A1 Pulsatile tinnitus, right ear H93.A2 Pulsatile tinnitus, left ear H93.A3 Pulsatile
tinnitus, bilateral H93.A9 Pulsatile tinnitus,unspecified
ear These codes go in effect October 1, 2016.
is TRULY a fantastic development. So many of us have been assigned a "tinnitus" diagnosis code, when what
we experience is not tinnitus at all.
Pulsatile tinnitus is not tinnitus. This is an important, validating
change, and, in some cases, it will be a life-saving change to the way our cases are documented. With a distinguishable code,
more medical professionals will research OUR symptom, recognize the complexities unique to OUR cases, and know better than
to tell us to "live with it" before ordering a thorough and appropriate medical evaluation.
keeping track, the codes are within Chapter 8 - Diseases of the ear and mastoid process. We know that the underlying
causes of pulsatile tinnitus go beyond diseases of the ear, and, in fact, most causes do not have anything to do with the
ear. However, I still think this is a positive development that will go to great strides to distinguish our cases from
regular tinnitus cases, resulting in quicker and more appropriate evaluation.
Hooray for Whooshers everywhere! Make
sure your doctors are aware of the new PULSATILE TINNITUS DIAGNOSIS CODES!
Sun, August 28, 2016 |
A Diagnosis is Only Half the Battle
story recently published by out of Columbus, Ohio, highlights a diagnosis and attempted treatment for pulsatile tinnitus. Unfortunately, the treatment
was not successful, however the story accurately identifies her symptom as *pulsatile* tinnitus and describes the frustrating
and, sadly, common quest many of us experience to achieve a diagnosis. The Columbus Dispatch
Her diagnosis, dural arteriovenous
fistula (DAVF) is one we have seen before. It is an underlying cause that can be dangerous if left untreated. According
Johns Hopkins Medicine, DAVF is "an abnormal connection of vessels in the tissues around the brain or spinal cord in which one or more arteries
are directly connected to one or more veins or venous spaces called sinuses." Also, see this page for more info written for patients' understanding.
There are numerous medical reports and personal stories
about DAVF linked to on our
Cured Whooshers page, including successful treatments.
This story is a reminder that each case is unique. Treatment can be complicated.
A diagnosis is only one step toward silence.
Like many in our community, this patient was her best advocate and
wouldn't take "live with it" for an answer. According to the story, she was seen by half a dozen specialists before
her underlying cause was identified.
Our community, especially those of us diagnosed with DAVFs, wishes this
patient the best during her recovery and her continued quest for silence! You're not alone!
As this story illustrates,
it's a big accomplishment to find the underlying cause of pulsatile tinnitus, but it is only half the battle.
"Athens County woman undergoes surgery to stop hearing her heartbeat in her head," The Columbia Dispatch,
Emily Tate, June 10, 2016.
Note: if you do not have a subscription to the site, access will only be allowed for limited clicks.
Sat, June 18, 2016 |
Weill Cornell Medical College in New York Announces a New Clinical Trial for Pulsatile Tinnitus
The FDA and the Weill Cornell Institutional Review Board (IRB) have approved a new clinical trial for pulsatile tinnitus
at Weill Cornell Medical College in New York City. The study will specifically address cases of stenosis (i.e. narrowing)
of veins near the brain, most commonly the transverse and sigmoid sinuses.
Read more information about the new
See additional info about the
"Venous Sinus Stenting to Treat Intractable Pulsatile Tinnitus Caused by Venous Sinus Stenosis"
study on www.clinicaltrials.gov.
And be sure to review (with your doctors!) the
Cured Whooshers page for medical reports and personal stories related to venous sinus stenosis (see transverse sinus stenosis or sigmoid
sinus stenosis). Sat, May 14, 2016 |
Prognostic Significance of Pulsatile Tinnitus in Cervical Artery Dissection (CeAD).
This is an interesting report involving an international Cervical Artery Dissection and Ischemic Stroke Patients (CADISP)
Read the abstract
Authors: Kellert L, Kloss M, Pezzini A, Debette S, Leys D, Caso V, Thijs VN, Bersano
A, Touzé E, Tatlisumak T, Traenka C, Lyrer PA, Engelter ST, Metso TM, Grond-Ginsbach C; Cervical Artery Dissection and Ischemic Stroke Patients (CADISP) study
group. Eur J Neurol. 2016 Apr 27. doi: 10.1111/ene.13031 . Sat, April 30, 2016 |
Support Pulsatile Tinnitus Research! The Otology Research Fund at the University of Maryland School of Medicine
For all of us who have been looking for pulsatile tinnitus research projects, I'm thrilled to announce that
The Otology Research Fund, maintained by the the Department of Otorhinolaryngology - Head and Neck Surgery at the University of Maryland
School of Medicine, is conducting - and looking for donations to support - research programs related specifically to pulsatile
If you are inclined to make a donation you should indicate PULSATILE TINNITUS on the donation pag
e and 100% of your donation will go toward PT research. From
their site: "Ongoing clinical and translational studies for pulsatile tinnitus include research directed towards understanding
sigmoid sinus wall anomalies, idiopathic intracranial hypertension, transverse sinus stenosis, and other venous causes of
pulsatile tinnitus. These include developing models for reproduction and modulation of pulsatile tinnitus, radiographic
imaging techniques, and surgical interventions." The School is very familiar
with our community and has been looking for ways to help us - this is a big step!
me in supporting them! Click here to learn more. Thu, March 31, 2016 |
How did you learn about Whooshers.com?
Whooshers.com Promote Your Page Too
NEW: Click Here to Download the PDF, "Top Ten Pulsatile Tinnitus Tips for Doctors." Review it with your GPs and ENTs!
Radiation Dose Chart - American Nuclear Society (ANS) Public Information Resources Page: Click here for an interactive dose
chart for various medical diagnostic tests. A downloadable and printable version is also available on this page. Discuss with
Find a Neurotologist: American Neurotological Society (ANS) Membership Roster 2015-2016, by state (US) - International contacts
at the bottom of the page. NEW! (This PDF file will download when you click here)
Find a Neurointervention Specialist: Society of Neurointerventional Surgery (SNIS)- Click on "Physician Locator"
Find a Neuro-Ophthalmologist: The North American Neuro-Ophthalmology Society (NANOS)
Site: Neuroangio.org - Your neurovascular education and information resource. Patient Information.
UCSF Pulsatile Tinnitus Clinic
Blog: Tales From Clark Street
Presentation: "Algorithm for Evaluation of Rhythmic Tinnitus," Douglas E Mattox, MD, Patricia Hudgins, MD, Jahrsdoerfer Lecture,
University of Virginia, March 25, 2010. (This link is to the abstract/summary)
Presentation: "Imaging of the Patient with Tinnitus," Mary Beth Cunnane MD, Massachusetts Eye and Ear Infirmary, Dec 2013.
(NEW! Mentions Pulsatile Tinnitus and Whooshers.com. Republished with Permission.)
Article: "Imaging in Pulsatile Tinnitus: Diagnostic Pearls and Potential Pitfalls," B. S. Purohit, R. Hermans, K. Op de beeck;
1SINGAPORE/SG, 2Leuven/BE, European Society of Radiology, 2014.
Article: "Imaging In Pulsatile Tinnitus : When Should It Ring A Bell?" G. Bathla1, V. Chong; 1singapore/SG, 2Singapore/SG,
European Society of Radiology, 2012."
Article: "Emma's Story," A Personal Account of Pulsatile Tinnitus, The British Tinnitus Association (BTA).
Article: "Pulsatile Tinnitus: Contemporary Assessment and Management," Aristides Sismanis, Current Opinion in Otolaryngology
& Head & Neck Surgery: October 2011 - Volume 19 - Issue 5 - p 348357 doi: 10.1097/MOO.0b013e3283493fd8, Otology and neuro-otology:
Edited by Myles L. Pensak.
Article: "Temporal Bone: Vascular Tinnitus," William W.M. Lo and M. Marcel Maya, Vascular, pp.1361-1374, 2003.
Article: "Diagnostic Clues in Pulsatile Tinnitus (Somatosounds)," Carlos Herraiza and José Miguel Aparicioa, Unidad de Acúfenos;
Instituto ORL Antolí-Candela, Madrid, Spain; Unidad de Otorrinolaringología, Fundación Hospital Alcorcón, Madrid, Spain; Otorrinolaringología,
Hospital Quirón, Madrid, Spain, Acta Otorrinolaringol Esp. 2007;58(9):426-33. This is a link to the article abstract.
Article: "How I Struggled with (PULSATILE) Tinnitus," The Story of Actor Graham Cole, Daily Mail Online, January 10, 2007.
Article: "I Got Lifesaving OP for Whooshing Thanks to US Help," David Powell, Daily Post UK, DPW West, Feb 19, 2013.
Article: "Vital Signs: An Unwelcome Ringing," by Dr. Christopher Linstrom, Discover Magazine, April 2010. (About a cured patient
with pulsatile tinnitus symptoms!)
Article: "Tinnitus Highlights Poor Doctor Patient Communication," Martin Young, MBChB, FCS(SA), Diagnosis and Treatment, KevinMd.Com,
Article: "Pulsatile Tinnitus: Recent Advances in Diagnosis," Aristides Sismanis MD, Wendy R. K. Smoker, MD, The Laryngoscope,
Volume 104, Issue 6, pages 681-688, June 1994. ABSTRACT (Summary)
Article: "Neuroradiologic Assessment of Pulsatile Tinnitus," Department of Otolaryngology Head and Neck Surgery Loyola University
Medical Center, Maywood, IL: Dr Kircher and Dr Leonetti; Department of Otolaryngology-Head and Neck Surgery Henry Ford Health
System, Detroit, MI: Dr Standring; Presented at the Annual Meeting of the American Academy of Otolaryngology-Head Neck Surgery,
Chicago, IL. Sept. 22-24, 2008. (CLICKING THIS LINK WILL DOWNLOAD THE PDF FILE)
Article: "Imaging of Tinnitus: A Review," Jane L. Weissman, MD and Barry E. Hirsch, MD, Radiology, August 2000.
Article: "Imaging in Pulsatile Tinnitus," G. Madania and S.E.J. Connor, Clinical Radiology, Volume 64, Issue 3, Pages 319-328
Article: "Imaging of the Patient With Tinnitus," Mary Beth Cunnane MD, Massachusetts Eye and Ear Infirmary, December 31, 2013.
(NEW! Mentions Whooshers.com and PULSATILE tinnitus as well.)
Article: "Imaging of Pulsatile Tinnitus: A Review of 74 Patients," Guner Sonmez, C Cinar Basekim, Ersin Ozturk, Atilla Gungor,
Esref Kizilkaya, Clinical Imaging, Volume 31, Issue 2, Pages 102-108 (March 2007). (This is an abstract/summary-you have to
pay to see the article in its entirety)
Article: "Pulsatile Tinnitus: A Review of 84 Patients," Daniel Waldvogel, Heinrich P. Mattle, Matthias Sturzenegger and Gerhard
Schroth, Journal of Neurology, Volume 245, Number 3, 137-142, DOI: 10.1007/s004150050193, November 12, 1997.
Article: "Role of Angiography in the Evaluation of Patients With Pulsatile Tinnitus," Edward J. Shin, MD; Anil K. Lalwani,
MD; Christopher F. Dowd, MD, Laryngoscope 110: November 2000. (PDF FILE)
Article: "Angioplasty and Stenting for Intractable Pulsatile Tinnitus Caused by Dural Venous Sinus Stenosis: A Case Series
Report," Li Baomin, Shi Yongbing, and Cao Xiangyu, Dept of Neurosurgery, Chinese PLA General Hospital, Beijing, Otol Neurotol.
35.366-370. Dec 2014.
Article: "CT Angiography as a Screening Tool for Dural Arteriovenous Fistula in Patients with Pulsatile Tinnitus: Feasibility
and Test Characteristics," J. Narvid, H.M. Do, N.H. Blevins and N.J. Fishbein, American Journal of Neuroradiology 32:446-453,
Article: "Brain Dural Arteriovenous Fistula (BDAVF)," Patient Information, www.NeuroAngio.org
Article: "Usefulness of C-Arm Cone-Beam Computed Tomography in Endovascular Treatment of Traumatic Carotid Cavernous Fistulas:
A Technical Case Report," Sato, Kenichi MD, PhD; Matsumoto, Yasushi MD; Kondo, Ryushi MD, PhD; Tominaga, Teiji MD, PhD, Neurosurgery:
August 2010 - Volume 67 - Issue 2 - p 467470.
Article (Abstract): "A Convenient Sonographic Technique for Diagnosis of Pulsatile Tinnitus Induced by a High Jugular Bulb,"
The American Institute of Ultrasound in Medicine, Minoru Nakagawa, MD, Norimitsu Miyachi, MLT and Kenjiro Fujiwara, MD, Department
of Neurosurgery (M.N., K.F.) and Clinical Laboratory (N.M.), Kosei General Hospital, Hiroshima, Japan, J Ultrasound Med 27:139-140
Article: "Surgical Treatment of the High Jugular Bulb in Patients with Ménières Disease and Pulsatile Tinnitus," V. Couloigner,
A. Bozorg Grayeli, D. Bouccara, N. Julien and O. Sterkers, European Archives of Oto-Rhino-Laryngology Volume 256, Number 5,
224-229, DOI: 10.1007/s004050050146 (ABSTRACT)
Article: "Brain AVM," (arteriovenous malformation), MayoClinic.com
Article: "Chiari Malformation," MayoClinic.com
Article: "Ménière's Disease," National Institute on Deafness and Other Communication Disorders (NIDCD)
Article: "TMJ Disorders," MayoClinic.com
Article: "Anemia," American Society of Hematology, Hemotology.org
Article: "Pseudotumor Cerebri," (also called Benign Intracranial Hypertension) MayoClinic.com
Article: "Pulse-Synchronous Tinnitus," The Intracranial Hypertension Research Foundation
Article: "Coarctation of the Aorta," MayoClinic.com
Article: "Man Cured of Hearing His Eyeballs Move," www.bbc.co.uk, July 27, 2011. Superior Canal Dehiscence Syndrome (SCDS)
Article: "Diagnosis and Cure of Venous Hum Tinnitus," Laryngoscope, Chandler JR, 93(7):892-5, July 1983.
Article: (Abstract) "Sinus Wall Reconstruction for Sigmoid Sinus Diverticulum and Dehiscence: A Standardized Surgical Procedure
for a Range of Radiographic Findings," Dr. DJ Eisenman, Department of Otorhinolaryngology - Head & Neck Surgery, University
of Maryland School of Medicine, Baltimore, Maryland; Otology Neurotology, 32(7):1116-9; September 2011.
Article: (Abstract) "Awake Embolization of Sigmoid Sinus Diverticulum Causing Pulsatile Tinnitus: Simultaneous Confirmative
Diagnosis and Treatment," Park YH, Kwon HJ, Department of Otolaryngology-Head and Neck Surgery, Chungnam National University
School of Medicine, Daejeon, Republic of Korea, Interv Neuroradiol. 2011 Sep;17(3):376-9. Epub 2011 Oct 17. (NEW!)
Article: "A New Therapeutic Procedure for Treatment of Objective Venous Pulsatile Tinnitus," Sanchez TG, Murao M, Medeiros
HRT, Kii M, Bento RF, Caldas JG, et al. Int Tinnitus J. 2002;8(1):54-57.
Article: "Glomus Tympanicum," The New England Journal of Medicine, Volume 362:e66, Number 22, June 3, 2010.
Article: "Resolution of Pulsatile Tinnitus Following an Upper Mediastinal Lymph Node Resection," Wang YZ, Boudreaux JP, Campeau
RJ, Woltering EA, South Med J. 2010 Apr;103(4):374-7.
Article: (Abstract) "Dissection of the Internal Carotid Artery After SCUBA-Diving: A Case Report and Review of the Literature,"
Franz Hafner, MD,* Thomas Gary, MD,* Froehlich Harald, MD,* Ernst Pilger,* Reinhard Groell, PD,w and Marianne, Brodmann* "Neurologist.
17(2):79-82, March 2011. (NEW!)
Article: "Carotid-Cavernous Sinus Fistula," Bobby S. Korn, M.D., Ph.D., and Kang Zhang, M.D., Ph.D., N Engl J Med 2011; 364:e15,
February, 24, 2011. (WARNING: GRAPHIC IMAGES)
Article: "Pulsatile Tinnitus Cured by Mastoidectomy," Duvillard C, Ballester M, Redon E, Romanet P., Department of Otolaryngology-Head
and Neck Surgery, Hôpital Général, Dijon, France, Ann Otol Rhinol Laryngol, September 2004.
Article: "Pulsatile Tinnitus: A Symptom of Chronic Subclavian Artery Occlusion," Marcio Francisco Lehmann, Charbel Mounayer,
Goetz Benndorf, Michel Piotin, and Jacques Moret, AJNR Am J Neuroradiol 26:19601963, September 2005 (PDF).
Article: "Carotid Endarterectomy Relieves Pulsatile Tinnitus Associated with Severe Ipsilateral Carotid Stenosis," J Kirkby-Bott,
H.H Gibbs, European Journal of Vascular & Endovascular Surgery, Volume 27, Issue 6, Pages 651-653, June 2004.
Article: "MR Angiography Imaging of Absence Vertebral Artery Causing of Pulsatile Tinnitus: A Case Report," *Mehmet Cudi Tuncer;
**Yekta Helbest Akgül & *Özlen Karabulut,* Department of Anatomy, Faculty of Dicle University, 21280, Diyarbak¹r, Turkey.**
Department of Otorhinolaryngology, Özel Diyarbakr Hospital, 21100, Diyarbakr, Turkey, International Journal of Morphology,
v.28 n.2 Temuco Jun. 2010."
Article: "Endovascular Treatment of Sigmoid Sinus Aneurysm Presenting as Devastating Pulsatile Tinnitus. A Case Report and
Review of Literature." Mehanna R, Shaltoni H. Morsi H, Mawad M., Interv Neuroradiol. 2010 Dec;16(4):451-4. Epub 2010 Dec 17.
"Pulsatile Tinnitus Caused by an Aneurysm of the Transverse-Sigmoid Sinus: A New Case Report and Review of Literature," Lenck
S, Mosimann PJ, Labeyrie MA, Houdart E., Department of Neuroradiology, hôpital Lariboisière, 2, rue Ambroise-Paré, 75010 Paris,
France, J Neuroradiol. 2012 Oct;39(4):276-9. doi: 10.1016/j.neurad.2012.02.001. Epub 2012 Sep 29. (NEW!)
Article: "Intractable Tinnitus and Sensorineural Deafness Cured by Surgical Correction of Coarctation of Aorta," S. Rathinam,
A.M. Pettigrew, J.C.S. Pollack, Interactive Cardiovascular and Thoracic Surgery 3:431-433 (2004).
Article: "Pulsatile Tinnitus," Don McFerran FRCS Consultant Otolaryngologist Essex County Hospital, Colchester, British Tinnitus
Association, October 2007.
Article: "Pulsatile Tinnitus and Dural Arteriovenous Malformation (Dural AVM)," G. A. J. Morrison, The Journal of Laryngology
& Otology (1989), 103:1073-1075 Cambridge University Press (ABSTRACT).
Article: "Medical Mystery: Giving Birth Didn't Ease a Woman's Dangerous Hypertenstion," Sandra G. Boodman, The Washington
Post, October 17, 2011.
Article: "That Noise Wasn't Just Tinnitus," Sandra G. Boodman, Special to The Washington Post, July 7, 2009
Article: "What's That Noise In Her?" H. Lee Kagan, Discovery Magazine, January 2006. (About a patient with arteriovenous malformation
(AVM) and her doctor whose patience and persistence paid off).
Article: "The 'Rare' Disease That Isn't," Thomas M. Burton, The Wall Street Journal, June 27, 2009
Article: "Diseases and Conditions/ Fibromuscular Dysplasia (FMD)," Cleveland Clinic. Lists symptoms, details, treatments,
and resources including Whooshers.com.
Article: Unraveling Pulsatile Tinnitus in FMD: A Report of the United States Registry For Fibromuscular Dysplasia."
Video: "A Rare Disease That May Be Underdiagnosed," Thomas M. Burton, June 26, 2009 (Hear an example of a whooshing sound
in this short video)
Whooshers.com Pulsatile Tinnitus Sounds (Real Ones Recorded by Real Whooshers!)
Audio: Having trouble describing the sound you hear to others? Listen to this collection of sounds that whoosh and see if
you can find a match to yours! Demonstrations: Heart Sounds & Murmurs, from the University of Washington Department of Medicine
Audio: FREE White Noise from White Noise MP3s.com
Whooshers.com Review: SleepPhones- Soft, comfortable headphones to help mask the whoosh for a good night's sleep.