Poll Results: Does Someone Else In Your Family Also Experience Pulsatile Tinnitus?
44% No, no one else in my family has ever whooshed. Just me.
Yes, someone else in my family is whooshing or was whooshing in the past. 22% I don't
Thanks for voting and please vote in this week's poll!
Sat, December 19, 2009 |
Top 10 Gifts You Can Give Someone Suffering From Pulsatile Tinnitus
10. Remember that pulsatile tinnitus is a very real and potentially serious health issue. Try not
to laugh when they tell you they hear a whooshing noise.
9. Put together
a compilation of white noise, pink noise or red noise.
8. Listen to whooshing sounds. Encourage the person to find one that matches their whoosh. Imagine what it's like to hear
7. Let them turn up the volume on the television
or radio, even if it seems a little too loud.
6. Ask them how they’re
doing. Ask if they'd like you to accompany them to doctor visits.
organize medical records for upcoming visits to the doctor and medical insurance claims.
4. One pair of really good ear bud headphones for listening to a portable music device
or white noise maker. Preferably ones that are comfortable to wear while sleeping or taking a nap.
Tell them they’re not alone. 2. A good sound machine. 1. Tell them about Whooshers.com. Read through some of the posts so you can familiarize yourself with common symptoms and experiences.
HAPPY HOLIDAYS! Sat, December 19, 2009 |
Poll Results: Have You Found An Audio File On This Site That Sounds Like Your Whoosh?
50% voted: Yes, I have found a sound file that sounds like my whoosh!
30% voted: No, I haven't looked yet, but I will click on the archive link, "2009.09.01"
at the top of this site for the blog post that includes different audio files.
17% voted: I've looked, but I haven't yet found a sound file that's like my whoosh.
for voting! Please participate in this week's poll and email your new poll question ideas to
firstname.lastname@example.org. Wed, December 9, 2009 |
Another Whoosher Cured. Another Cause(s): Arnold Chiari Malformation & Pseudotumor Cerebri
I recently received a moving letter from a fellow whoosher. After thirteen years of tests and sharing the films of
those tests with countless doctors, the cause of her whoosh was finally identified and fixed. She wanted to share her experience
to help others still on the road toward proper diagnosis.
had Pulsatile Tinnitus that started in early September 1987. It took me thirteen years to finally have a diagnosis as to the
cause and relief. There was no joy or peace in my life because of the noise. I had almost lost all hope. The day
I finally found out I had a Chiari Malformation and then the pseudotumor [cerebri] was the best day ever for me.
Here is my story....I always had headaches daily since childhood. I just suffered with them. When I was twenty three I was
married and went to Hawaii...a long flight to and from New York. When I returned home, the next day, my right ear was pounding
in pace with my heartbeat. So, that started the saga of doctors' visits. I saw everyone, had every test and no help. Finally,
four years into doctors' visits, they told me I had pulsatile tinnitus but there was no cure and just live with it. I saw the best doctors in New York.
I had MRIs and MRAs and standard angiography to look at my blocked jugular vein. One surgeon thought the block was from a
glomus tumor but when the angio ruled out a tumor, there was nothing he could do to open the blockage. So, I just continued
to see doctor after doctor and I carried those heavy films everywhere. I would arrive to each office exhausted with my ear pounding like crazy
because all the walking around pushed more spinal fluid through my head which could not move properly due to the blockage.
Plus, my head would throb with pain. No one could help me. Finally in 1999, I became pregnant and during the pregnancy, my noises intensified. My head
was killing me and my pounding became a roaring. They said the blocked jugular vein was causing the extra blood volume to
slow down and that after delivery, the noise would just go back to pounding. At that point, I still was not told I had a Chiari
Malformation. By my seventh month, the pounding and roaring became the sound of water running constantly and a constant swooshing.
I was miserable and still seeing neuros, radiologists, neurotologists. You name the doctor, I saw them. No one had a clue. Finally, in Feb 2000, I had the baby
but needed a spinal. After they gave me the spinal, my noises all stopped for three full days. I had no ringing, no roaring
no water running....just peace. The day I left the hospital, my ear started to throb in pace with my heartbeat and roar and the water noises were
back even stronger. I was horrified and I had a newborn. I started again to see doctors to no avail. Everyone said the jugular
vein was blocked and nothing could be done ever. Ironically, years earlier, I had purchased a book on Tinnitus and there was a chapter written
by Dr. Sismanis about Pulsatile Tinnitus. It sounded just like my symptoms. I started showing the chapter to doctors thinking
it would help get a diagnosis but they all dismissed me and the chapter. So I put the book away after a while. When in January 2000, I started hearing
the water run, I wrote to Dr. Sismanis and he looked at all my MRIs. He called me back in March, after I had my son and they
clearly saw the Chiari Malformation on all of my films and [determined] that it was the cause of my troubles. I was stunned
because I had the films for years and no one ever mentioned the Chiari until Dr. Sismanis. So that day was the turning point
for me. I am in his debt forever. He is a wonderful doctor. I was sad to hear he retired but hope he is happy. Finally, I found the greatest neurosurgeons
ever to grace this world and they repaired the Chiari Malformation and placed a VP shunt to help drain [the blockage] of spinal
fluid from my head and to bypass the blocked jugular vein. So, please read about Arnold Chiari Malformations and Pseudotumor Cerebri. I am not saying
it is the cause of your noises but it caused mine and it took a lifetime for me to find the reason. Dana
Learn more about Chairi Malformation and Pseudotumor Cerebri from the links in
the "Resources" section on the right-hand side of this site and below.
The Chiari Institute Chiari Connection International
"Pseudotumor Cerebri," (also called Benign Intracranial Hypertension) MayoClinic.com Sat, December 5, 2009 |
How did you learn about Whooshers.com?
Whooshers.com Promote Your Page Too
NEW: Click Here to Download the PDF, "Top Ten Pulsatile Tinnitus Tips for Doctors." Review it with your GPs and ENTs!
Radiation Dose Chart - American Nuclear Society (ANS) Public Information Resources Page: Click here for an interactive dose
chart for various medical diagnostic tests. A downloadable and printable version is also available on this page. Discuss with
Find a Neurotologist: American Neurotological Society (ANS) Membership Roster
Find a Neurointervention Specialist: Society of Neurointerventional Surgery (SNIS)- Click on "Physician Locator"
Find a Neuro-Ophthalmologist: The North American Neuro-Ophthalmology Society (NANOS)
Site: Neuroangio.org - Your neurovascular education and information resource. Patient Information.
UCSF Pulsatile Tinnitus Clinic
Blog: Tales From Clark Street
Presentation: "Algorithm for Evaluation of Rhythmic Tinnitus," Douglas E Mattox, MD, Patricia Hudgins, MD, Jahrsdoerfer Lecture,
University of Virginia, March 25, 2010. (This link is to the abstract/summary)
Presentation: "Imaging of the Patient with Tinnitus," Mary Beth Cunnane MD, Massachusetts Eye and Ear Infirmary, Dec 2013.
(NEW! Mentions Pulsatile Tinnitus and Whooshers.com. Republished with Permission.)
Article: "Imaging in Pulsatile Tinnitus: Diagnostic Pearls and Potential Pitfalls," B. S. Purohit, R. Hermans, K. Op de beeck;
1SINGAPORE/SG, 2Leuven/BE, European Society of Radiology, 2014.
Article: "Imaging In Pulsatile Tinnitus : When Should It Ring A Bell?" G. Bathla1, V. Chong; 1singapore/SG, 2Singapore/SG,
European Society of Radiology, 2012."
Article: "Emma's Story," A Personal Account of Pulsatile Tinnitus, The British Tinnitus Association (BTA).
Article: "Pulsatile Tinnitus: Contemporary Assessment and Management," Aristides Sismanis, Current Opinion in Otolaryngology
& Head & Neck Surgery: October 2011 - Volume 19 - Issue 5 - p 348357 doi: 10.1097/MOO.0b013e3283493fd8, Otology and neuro-otology:
Edited by Myles L. Pensak.
Article: "Temporal Bone: Vascular Tinnitus," William W.M. Lo and M. Marcel Maya, Vascular, pp.1361-1374, 2003.
Article: "Diagnostic Clues in Pulsatile Tinnitus (Somatosounds)," Carlos Herraiza and José Miguel Aparicioa, Unidad de Acúfenos;
Instituto ORL Antolí-Candela, Madrid, Spain; Unidad de Otorrinolaringología, Fundación Hospital Alcorcón, Madrid, Spain; Otorrinolaringología,
Hospital Quirón, Madrid, Spain, Acta Otorrinolaringol Esp. 2007;58(9):426-33. This is a link to the article abstract.
Article: "How I Struggled with (PULSATILE) Tinnitus," The Story of Actor Graham Cole, Daily Mail Online, January 10, 2007.
Article: "I Got Lifesaving OP for Whooshing Thanks to US Help," David Powell, Daily Post UK, DPW West, Feb 19, 2013.
Article: "Vital Signs: An Unwelcome Ringing," by Dr. Christopher Linstrom, Discover Magazine, April 2010. (About a cured patient
with pulsatile tinnitus symptoms!)
Article: "Tinnitus Highlights Poor Doctor Patient Communication," Martin Young, MBChB, FCS(SA), Diagnosis and Treatment, KevinMd.Com,
Article: "Pulsatile Tinnitus: Recent Advances in Diagnosis," Aristides Sismanis MD, Wendy R. K. Smoker, MD, The Laryngoscope,
Volume 104, Issue 6, pages 681-688, June 1994. ABSTRACT (Summary)
Article: "Neuroradiologic Assessment of Pulsatile Tinnitus," Department of Otolaryngology Head and Neck Surgery Loyola University
Medical Center, Maywood, IL: Dr Kircher and Dr Leonetti; Department of Otolaryngology-Head and Neck Surgery Henry Ford Health
System, Detroit, MI: Dr Standring; Presented at the Annual Meeting of the American Academy of Otolaryngology-Head Neck Surgery,
Chicago, IL. Sept. 22-24, 2008. (CLICKING THIS LINK WILL DOWNLOAD THE PDF FILE)
Article: "Imaging of Tinnitus: A Review," Jane L. Weissman, MD and Barry E. Hirsch, MD, Radiology, August 2000.
Article: "Imaging in Pulsatile Tinnitus," G. Madania and S.E.J. Connor, Clinical Radiology, Volume 64, Issue 3, Pages 319-328
Article: "Imaging of the Patient With Tinnitus," Mary Beth Cunnane MD, Massachusetts Eye and Ear Infirmary, December 31, 2013.
(NEW! Mentions Whooshers.com and PULSATILE tinnitus as well.)
Article: "Imaging of Pulsatile Tinnitus: A Review of 74 Patients," Guner Sonmez, C Cinar Basekim, Ersin Ozturk, Atilla Gungor,
Esref Kizilkaya, Clinical Imaging, Volume 31, Issue 2, Pages 102-108 (March 2007). (This is an abstract/summary-you have to
pay to see the article in its entirety)
Article: "Pulsatile Tinnitus: A Review of 84 Patients," Daniel Waldvogel, Heinrich P. Mattle, Matthias Sturzenegger and Gerhard
Schroth, Journal of Neurology, Volume 245, Number 3, 137-142, DOI: 10.1007/s004150050193, November 12, 1997.
Article: "Role of Angiography in the Evaluation of Patients With Pulsatile Tinnitus," Edward J. Shin, MD; Anil K. Lalwani,
MD; Christopher F. Dowd, MD, Laryngoscope 110: November 2000. (PDF FILE)
Article: "Angioplasty and Stenting for Intractable Pulsatile Tinnitus Caused by Dural Venous Sinus Stenosis: A Case Series
Report," Li Baomin, Shi Yongbing, and Cao Xiangyu, Dept of Neurosurgery, Chinese PLA General Hospital, Beijing, Otol Neurotol.
35.366-370. Dec 2014.
Article: "CT Angiography as a Screening Tool for Dural Arteriovenous Fistula in Patients with Pulsatile Tinnitus: Feasibility
and Test Characteristics," J. Narvid, H.M. Do, N.H. Blevins and N.J. Fishbein, American Journal of Neuroradiology 32:446-453,
Article: "Brain Dural Arteriovenous Fistula (BDAVF)," Patient Information, www.NeuroAngio.org
Article: "Usefulness of C-Arm Cone-Beam Computed Tomography in Endovascular Treatment of Traumatic Carotid Cavernous Fistulas:
A Technical Case Report," Sato, Kenichi MD, PhD; Matsumoto, Yasushi MD; Kondo, Ryushi MD, PhD; Tominaga, Teiji MD, PhD, Neurosurgery:
August 2010 - Volume 67 - Issue 2 - p 467470.
Article (Abstract): "A Convenient Sonographic Technique for Diagnosis of Pulsatile Tinnitus Induced by a High Jugular Bulb,"
The American Institute of Ultrasound in Medicine, Minoru Nakagawa, MD, Norimitsu Miyachi, MLT and Kenjiro Fujiwara, MD, Department
of Neurosurgery (M.N., K.F.) and Clinical Laboratory (N.M.), Kosei General Hospital, Hiroshima, Japan, J Ultrasound Med 27:139-140
Article: "Surgical Treatment of the High Jugular Bulb in Patients with Ménières Disease and Pulsatile Tinnitus," V. Couloigner,
A. Bozorg Grayeli, D. Bouccara, N. Julien and O. Sterkers, European Archives of Oto-Rhino-Laryngology Volume 256, Number 5,
224-229, DOI: 10.1007/s004050050146 (ABSTRACT)
Article: "Brain AVM," (arteriovenous malformation), MayoClinic.com
Article: "Chiari Malformation," MayoClinic.com
Article: "Ménière's Disease," National Institute on Deafness and Other Communication Disorders (NIDCD)
Article: "TMJ Disorders," MayoClinic.com
Article: "Anemia," American Society of Hematology, Hemotology.org
Article: "Pseudotumor Cerebri," (also called Benign Intracranial Hypertension) MayoClinic.com
Article: "Pulse-Synchronous Tinnitus," The Intracranial Hypertension Research Foundation
Article: "Coarctation of the Aorta," MayoClinic.com
Article: "Man Cured of Hearing His Eyeballs Move," www.bbc.co.uk, July 27, 2011. Superior Canal Dehiscence Syndrome (SCDS)
Article: "Diagnosis and Cure of Venous Hum Tinnitus," Laryngoscope, Chandler JR, 93(7):892-5, July 1983.
Article: (Abstract) "Sinus Wall Reconstruction for Sigmoid Sinus Diverticulum and Dehiscence: A Standardized Surgical Procedure
for a Range of Radiographic Findings," Dr. DJ Eisenman, Department of Otorhinolaryngology - Head & Neck Surgery, University
of Maryland School of Medicine, Baltimore, Maryland; Otology Neurotology, 32(7):1116-9; September 2011.
Article: (Abstract) "Awake Embolization of Sigmoid Sinus Diverticulum Causing Pulsatile Tinnitus: Simultaneous Confirmative
Diagnosis and Treatment," Park YH, Kwon HJ, Department of Otolaryngology-Head and Neck Surgery, Chungnam National University
School of Medicine, Daejeon, Republic of Korea, Interv Neuroradiol. 2011 Sep;17(3):376-9. Epub 2011 Oct 17. (NEW!)
Article: "A New Therapeutic Procedure for Treatment of Objective Venous Pulsatile Tinnitus," Sanchez TG, Murao M, Medeiros
HRT, Kii M, Bento RF, Caldas JG, et al. Int Tinnitus J. 2002;8(1):54-57.
Article: "Glomus Tympanicum," The New England Journal of Medicine, Volume 362:e66, Number 22, June 3, 2010.
Article: "Resolution of Pulsatile Tinnitus Following an Upper Mediastinal Lymph Node Resection," Wang YZ, Boudreaux JP, Campeau
RJ, Woltering EA, South Med J. 2010 Apr;103(4):374-7.
Article: (Abstract) "Dissection of the Internal Carotid Artery After SCUBA-Diving: A Case Report and Review of the Literature,"
Franz Hafner, MD,* Thomas Gary, MD,* Froehlich Harald, MD,* Ernst Pilger,* Reinhard Groell, PD,w and Marianne, Brodmann* "Neurologist.
17(2):79-82, March 2011. (NEW!)
Article: "Carotid-Cavernous Sinus Fistula," Bobby S. Korn, M.D., Ph.D., and Kang Zhang, M.D., Ph.D., N Engl J Med 2011; 364:e15,
February, 24, 2011. (WARNING: GRAPHIC IMAGES)
Article: "Pulsatile Tinnitus Cured by Mastoidectomy," Duvillard C, Ballester M, Redon E, Romanet P., Department of Otolaryngology-Head
and Neck Surgery, Hôpital Général, Dijon, France, Ann Otol Rhinol Laryngol, September 2004.
Article: "Pulsatile Tinnitus: A Symptom of Chronic Subclavian Artery Occlusion," Marcio Francisco Lehmann, Charbel Mounayer,
Goetz Benndorf, Michel Piotin, and Jacques Moret, AJNR Am J Neuroradiol 26:19601963, September 2005 (PDF).
Article: "Carotid Endarterectomy Relieves Pulsatile Tinnitus Associated with Severe Ipsilateral Carotid Stenosis," J Kirkby-Bott,
H.H Gibbs, European Journal of Vascular & Endovascular Surgery, Volume 27, Issue 6, Pages 651-653, June 2004.
Article: "MR Angiography Imaging of Absence Vertebral Artery Causing of Pulsatile Tinnitus: A Case Report," *Mehmet Cudi Tuncer;
**Yekta Helbest Akgül & *Özlen Karabulut,* Department of Anatomy, Faculty of Dicle University, 21280, Diyarbak¹r, Turkey.**
Department of Otorhinolaryngology, Özel Diyarbakr Hospital, 21100, Diyarbakr, Turkey, International Journal of Morphology,
v.28 n.2 Temuco Jun. 2010."
Article: "Endovascular Treatment of Sigmoid Sinus Aneurysm Presenting as Devastating Pulsatile Tinnitus. A Case Report and
Review of Literature." Mehanna R, Shaltoni H. Morsi H, Mawad M., Interv Neuroradiol. 2010 Dec;16(4):451-4. Epub 2010 Dec 17.
"Pulsatile Tinnitus Caused by an Aneurysm of the Transverse-Sigmoid Sinus: A New Case Report and Review of Literature," Lenck
S, Mosimann PJ, Labeyrie MA, Houdart E., Department of Neuroradiology, hôpital Lariboisière, 2, rue Ambroise-Paré, 75010 Paris,
France, J Neuroradiol. 2012 Oct;39(4):276-9. doi: 10.1016/j.neurad.2012.02.001. Epub 2012 Sep 29. (NEW!)
Article: "Intractable Tinnitus and Sensorineural Deafness Cured by Surgical Correction of Coarctation of Aorta," S. Rathinam,
A.M. Pettigrew, J.C.S. Pollack, Interactive Cardiovascular and Thoracic Surgery 3:431-433 (2004).
Article: "Pulsatile Tinnitus," Don McFerran FRCS Consultant Otolaryngologist Essex County Hospital, Colchester, British Tinnitus
Association, October 2007.
Article: "Pulsatile Tinnitus and Dural Arteriovenous Malformation (Dural AVM)," G. A. J. Morrison, The Journal of Laryngology
& Otology (1989), 103:1073-1075 Cambridge University Press (ABSTRACT).
Article: "Medical Mystery: Giving Birth Didn't Ease a Woman's Dangerous Hypertenstion," Sandra G. Boodman, The Washington
Post, October 17, 2011.
Article: "That Noise Wasn't Just Tinnitus," Sandra G. Boodman, Special to The Washington Post, July 7, 2009
Article: "What's That Noise In Her?" H. Lee Kagan, Discovery Magazine, January 2006. (About a patient with arteriovenous malformation
(AVM) and her doctor whose patience and persistence paid off).
Article: "The 'Rare' Disease That Isn't," Thomas M. Burton, The Wall Street Journal, June 27, 2009
Article: "Diseases and Conditions/ Fibromuscular Dysplasia (FMD)," Cleveland Clinic. Lists symptoms, details, treatments,
and resources including Whooshers.com.
Article: Unraveling Pulsatile Tinnitus in FMD: A Report of the United States Registry For Fibromuscular Dysplasia."
Video: "A Rare Disease That May Be Underdiagnosed," Thomas M. Burton, June 26, 2009 (Hear an example of a whooshing sound
in this short video)
Whooshers.com Pulsatile Tinnitus Sounds (Real Ones Recorded by Real Whooshers!)
Audio: Having trouble describing the sound you hear to others? Listen to this collection of sounds that whoosh and see if
you can find a match to yours! Demonstrations: Heart Sounds & Murmurs, from the University of Washington Department of Medicine
Audio: FREE White Noise from White Noise MP3s.com
Whooshers.com Review: SleepPhones- Soft, comfortable headphones to help mask the whoosh for a good night's sleep.