HOMECured Whooshers (NEW!)Join Us For WhooshersNYC! 10/2/2010 UPDATED!Map Your Whoosh!Poll ResultsArchivesA Note To The Medical CommunityBooks On Sound (Coming Soon!)About This SiteContact Us
Archive Newer | Older

I Can Hear My Heartbeat: A Haiku
 
Whoosh, swoosh, roar.  Constant
Heartbeat in my ear.  Silence?
Where is the silence?
 
Fri, November 27, 2009 | link          Comments

Poll Results: My Whooshing Sound Started ...

Suddenly.   60% (18 votes)

Gradually.  30% (9 votes)

So long ago I can't remember how it started.  10% (3 votes)

When I was born, I think. I have always heard the whoosh.  0% (No votes)

Total Votes: 30

Thanks for voting!  Please see this week's new poll.

Thu, November 26, 2009 | link          Comments

Attention Medical Community: Tinnitus Research Consortium Request For Applications For A Grant-In-Aid

"The Tinnitus Research Consortium, supported by private philanthropy, invites applications for the support of a clinical trial of therapy for individuals who suffer from tinnitus.  The goal of this Request for Applications is to add to the clinical options in the treatment of such individuals."

Whooshers.com has confirmed that applications addressing pulsatile tinnitus WILL be considered. 

Letter of Intent Receipt Date: December 15, 2009
Application Receipt Date: February 1, 2010

Whooshers, please encourage your doctors and medical institutions to apply!

Click HERE for more details on eligibility requirements, application procedures, and more.

Fri, November 20, 2009 | link          Comments

The First Whoosh

I remember the first time I heard my whoosh.  About 9 months ago, I heard a faint heartbeat sound in my ear and I asked people around me whether they heard it, too.  I thought it was external.  After a few weird looks, I thought maybe I just had a stuffy head from a cold.  But when the sound didn't go away, I looked to the Internet for some answers.

The Internet is a great place to find information, but it can be a scary place when you use it to find answers to health issues.  I'm convinced that if you do a search for even the most minor problem, you can find a message board somewhere that concludes you have cancer.  Only months to live.  It's difficult to find accurate health information online. 

It's key to remember that the Internet is not the right place to be diagnosed.  That's what doctors' offices are for.  But we can increase our chances of a getting a prompt and proper diagnosis, especially as sufferers of a rare condition, by going in with an open mind and enough information. 

Be your best advocate.

Effectively communicating to our doctors -- describing our symptoms and how they are affecting our lives -- is also very important.  It's okay to ask for help. 

Whooshers.com was created to help you. 

If you're a new whoosher, welcome.  Many of us have been whooshing for months, years, even decades.  Some of us have had the cause of our whoosh identified and even "fixed." Others are still on the path to silence.  The road to diagnosis can sometimes be frustrating, but it's important not to panic and to remember that there are many, many possible causes of pulsatile tinnitus. 

A lot of new whooshers ask, "I hear my heartbeat in my ear, should I see a doctor?" The answer is YES, but not because you probably have cancer and just months to live.  In fact, there are many benign causes that can be treated effectively.

Under the "Resources" section in this site, you'll find links to articles about real pulsatile tinnitus patients all over the world.  This is not a medical site, but links to medical organizations are posted to help guide you towards making the call for your first doctor's appointment. 

Perhaps the best content here is written by fellow sufferers.  There are a lot of us and we come in all shapes and sizes.  Our stories are different, and the causes of our whooshes come in many varieties, but many of our experiences are the same.  As a sufferer myself, there's probably nothing more comforting than knowing I'm not alone in this.  

If you're interested in sharing your experience or thoughts about pulsatile tinnitus on this site, or just want to say hello, please write in to whooshers@gmail.com

Sharing our stories is the first step towards recovery!

WhooshEr

Sat, November 14, 2009 | link          Comments

Poll Results: My Pulsatile Tinnitus Bothers Me:
 
Most of the day, everyday.           68%        (13 votes)
Hardly at all, but everyday.           16%        (3 votes)
About half of the day, everyday.    11%        (2 votes)
Only some days.                            5%        (1 vote)
Never.                                           0%        (0 votes)
 
Total Votes: 19
 
Thanks for voting.  Please see the latest Whooshers.com poll
Fri, November 13, 2009 | link          Comments

Poll Results: My Sleeping Patterns Have Been Disrupted or Have Changed Because of Pulsatile Tinnitus.
 
Agree:         91%  (10 votes)
Disagree:       9%  (1 vote)

Total Votes: 11

Thanks for voting!  Please participate in this week's new poll.

Mon, November 2, 2009 | link          Comments


Archive Newer | Older


Follow Whooshers
         on Twitter

A forum for people experiencing a constant and rhythmic whooshing, pulsing or otherwise heartbeat-like sound, often diagnosed as pulsatile tinnitus.

RESOURCES

Find a Neurotologist: American Neurotological Society (ANS) Membership Roster 2010-2011, by state. (This PDF file will download when you click here)

Blog: Tales From Clark Street

Web Site: American Tinnitus Association

Web Site: British Tinnitus Association

Web Site: Tinnitus Association of Canada

Article: "Tinnitus," eMedicineHealth.com

Article: "How I Struggled with Tinnitus," The Story of Actor Graham Cole, Daily Mail Online.

Article: "Vital Signs: An Unwelcome Ringing," by Dr. Christopher Linstrom, Discover Magazine, April 2010. (About a cured pulsatile tinnitus patient!)

Article: "Technique Can Pinpoint Tinnitus," BBCNews.com, October 3, 2009

Article: "Tinnitus: The Noise That Annoys," The Independent, October 13, 2009

Article: "Neuroradiologic Assessment of Pulsatile Tinnitus," Department of Otolaryngology Head and Neck Surgery Loyola University Medical Center, Maywood, IL: Dr Kircher and Dr Leonetti; Department of Otolaryngology-Head and Neck Surgery Henry Ford Health System, Detroit, MI: Dr Standring; Presented at the Annual Meeting of the American Academy of Otolaryngology-Head Neck Surgery, Chicago, IL. Sept. 22-24, 2008. (CLICKING THIS LINK WILL DOWNLOAD THE PDF FILE)

Article: "Imaging of Tinnitus: A Review," Jane L. Weissman, MD and Barry E. Hirsch, MD, Radiology, August 2000.

Article: "Imaging in Pulsatile Tinnitus," G. Madania and S.E.J. Connor, Clinical Radiology, Volume 64, Issue 3, Pages 319-328 (March 2009).

Article: "Imaging of Pulsatile Tinnitus: A Review of 74 Patients," Guner Sonmez, C Cinar Basekim, Ersin Ozturk, Atilla Gungor, Esref Kizilkaya, Clinical Imaging, Volume 31, Issue 2, Pages 102-108 (March 2007). (This is an abstract/summary-you have to pay to see the article in its entirety)

Article: "Usefulness of C-Arm Cone-Beam Computed Tomography in Endovascular Treatment of Traumatic Carotid Cavernous Fistulas: A Technical Case Report," Sato, Kenichi MD, PhD; Matsumoto, Yasushi MD; Kondo, Ryushi MD, PhD; Tominaga, Teiji MD, PhD, Neurosurgery: August 2010 - Volume 67 - Issue 2 - p 467470. (NEW!)

Article: "Brain AVM," (arteriovenous malformation), MayoClinic.com

Article: "Chiari Malformation," MayoClinic.com

Article: "Ménière's Disease," National Institute on Deafness and Other Communication Disorders (NIDCD)

Article: "TMJ Disorders," MayoClinic.com

Article: "Pseudotumor Cerebri," (also called Benign Intracranial Hypertension) MayoClinic.com

Article: "Pulse-Synchronous Tinnitus," The Intracranial Hypertension Research Foundation

Article: "Diagnosis and Cure of Venous Hum Tinnitus," Laryngoscope, Chandler JR, 93(7):892-5, July 1983.

Article: "Glomus Tympanicum," The New England Journal of Medicine, Volume 362:e66, Number 22, June 3, 2010.

Article: "Pulsatile Tinnitus Cured by Mastoidectomy," Duvillard C, Ballester M, Redon E, Romanet P., Department of Otolaryngology-Head and Neck Surgery, Hôpital Général, Dijon, France, Ann Otol Rhinol Laryngol, September 2004.

Article: "Pulsatile Tinnitus," Don McFerran FRCS Consultant Otolaryngologist Essex County Hospital, Colchester, British Tinnitus Association, October 2007.

Article: "Carotid Bruit: What is It?" By Jules Pop, Associated Content, December 18, 2007

Article: "That Noise Wasn't Just Tinnitus," By Sandra G. Boodman, Special to The Washington Post, July 7, 2009

Article: "The 'Rare' Disease That Isn't," By Thomas M. Burton, The Wall Street Journal, June 27, 2009

Video: "A Rare Disease That May Be Underdiagnosed," By Thomas M. Burton, June 26, 2009 (Hear an example of a whooshing sound in this short video)

Audio: Having trouble describing the sound you hear to others? Listen to this collection of sounds that whoosh and see if you can find a match to yours! Demonstrations: Heart Sounds & Murmurs, from the University of Washington Department of Medicine

Audio: Representation of Tinnitus Sounds (Contains some pulsatile tinnitus sounds), British Tinnitus Association

Audio: White Noise MP3s.com

Audio: SimplyNoise.com