|
|
Whooshers.com was created primarily to provide a forum for sufferers of pulsatile tinnitus in all stages
of diagnoses. Pulsatile tinnitus is not tinnitus. The
rarity of pulsatile tinnitus creates challenges for patients and the medical communities that serve them. Whooshers
world-wide have united on Web sites like this one to compare stories, experiences, frustrations, and success stories.
All in an effort to find answers. Whooshers.com is also a resource for the medical community. Links to articles, research organizations, other Web sites, frequent polls, and patients’ testimonials offer valuable insight into the symptoms of pulsatile tinnitus. A common frustration among sufferers is that it is difficult to find doctors familiar with the symptoms of pulsatile tinnitus and/or its long (and perhaps indefinite) list of possible causes. As a result, many patients are not being screened properly. A simple Web search for symptoms of pulsatile tinnitus (“I hear my heartbeat in my ear,” “whoosh,” “sound in my ear”) reveals numerous blogs, medical forums, etc. on which the majority of patients report being told they must “live with it," often before all possible underlying causes are considered, tested and exhausted. That the constant, heartbeat-like sound sufferers hear has a name is simply not enough. We want and need to understand more about pulsatile tinnitus. While it is still the case that there
is no cure for "regular," nonpulsatile tinnitus, it may be possible to discover --and even cure--
some pulsatile tinnitus causes. Whooshers.com compiles medical journal articles (and abstracts) about such cases, as
well as personal stories (with permission) from whooshers who write to us. We encourage readers to share and review these stories with their doctors. Whooshers.com would like to facilitate communication between doctors specializing in pulsatile tinnitus causes and sufferers of pulsatile tinnitus. If you are a doctor, medical researcher, or other member of the medical community who would like to help in this effort, please contact us! All ideas and/or comments are welcome. Communications sent to info@pulsatiletinnitus.com will not be posted or otherwise disseminated without prior permission from the sender. Thank you. Whooshers.com |
|
|