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Whoosh [hwoosh, hwoosh, woosh, woosh] noun 1. a loud, rushing noise, as of air or water: a great whoosh as the door opened. verb (used without object) 2. to move swiftly with a gushing or hissing noise: gusts of wind whooshing through the trees. verb (used with object) 3. to move (an object, a person, etc.) with a whooshing motion or sound: The storm whooshed the waves over the road. Also, woosh. Origin: 1840-1850; imit.

Pulsatile tinnitus is a rhythmical noise that is synchronous with the patient's heartbeat.

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Another Pulsatile Tinnitus Patient Cured: Iatrogenic Pneumocephalus Fixed by Mastoidectomy

This is an abstract (a summary) of a longer medical journal article to review with our doctors. The patient was a 48-year old woman with roaring pulsatile tinnitus that was described as "very disturbing."  Once the underlying cause of her pulsatile tinnitus (Iatrogenic Pneumocephalus) was identified, a procedure called a mastoidectomy was performed and the pulsatile tinnitus disappeared.  The underlying cause gradually did, too.

Source: "Pulsatile tinnitus: a review of the literature and an unusual case of iatrogenic pneumocephalus causing pulsatile tinnitus," Xenellis J, Nikolopoulos TP, Felekis D, Tzangaroulakis A., Otol Neurotol. 2005 Nov;26(6):1149-51, First and Second Department of Otorhinolaryngology, Athens University, Athens, Greece.

Previously, I posted another link to an article about a pulsatile tinnitus patient who was also cured by a mastoidectomy, for a different cause:  http://www.ncbi.nlm.nih.gov/pubmed/15453531

Sat, October 23, 2010 | link          Comments

iStethoscope Pro: An iPhone App Alternative to the Stethoscope

Check out this cool invention by Dr. Peter J. Bentley. 

Inquiring pulsatile tinnitus minds want to know: If it works so well on the chest, WILL IT WORK ON OUR HEADS?  May this app help our doctors hear and LISTEN TO our whooshes?

UPDATE and TIPS: Here are some tips for whooshers who would like to try listening to their whooshes using this app, from the inventor, Peter J. Bentley.  PLEASE don't put your iPhone in water because it will destroy it.  Please let us know if you can hear your whoosh! 

"...experience shows that the best results would come from a 3G iphone, good quality headphones, and "Clear Sound" mode; you may also need to modify the audio filters to remove background noise and pick out the sound you're looking for. The biggest problem is placing the device so that the microphone is in exactly the right place. I'm no expert on tinnitus so I'd suggest you consult the journals for that information. However if a stethoscope can pick up the sound, then the app on an iphone should be able to as well.

...I would recommend you find a pair of super-good quality headphones so you can hear every possible frequency. The app continuously records the last 8 seconds so if you find the sweet spot, wait 8 seconds then touch the stethoscope or give the device a shake and it will play it back, and allow you to email the sound.

...If the noise is a deep or low sound then you may be better off using the Heartbeat pure mode. You may find increasing the amplification is necessary (i.e. go to Settings, IStethPro, heartbeat pure, and increase the value for the amplification to 1.0 or slightly more). You could also try reducing the low pass filter (so you cut out more high frequencies) by changing the Alpha value to 125.

Some doctors say they get great sound by putting the device inside a cup; others stretch tape or a surgical glove over the device or the spot on the body. The trick to reduce noise is to compress movable surfaces/objects such as hair with something that conducts sound well; for example wet hair and sandwich wrap might help, as daft as it sounds - water conducts sound very well. Don't give yourself a cold trying though. Indeed, if I were to try to construct a device specifically for your condition I'd probably try a floatation tank (sensory depravation tank) and ultra sensitive underwater microphones - hydrophones - placed around the head."

Wed, October 20, 2010 | link          Comments

Poll Results: Does Caffeine Affect Your Whoosh?

I don't know. 26%

No, caffeine has no effect on my whoosh.  16%

Yes, caffeine makes my whoosh more annoying!  5%

"Other" answer. 3%

Yes it makes the whoosh LESS annoying! 0%

Total votes: 50

Thanks for voting!  Please participate in the latest Whooshers.com poll on the right side of this page... this great question was proposed by a fellow whoosher.  And be sure to see this poll and all past poll questions and results on our Poll Results page.

P.S. If you have an idea for a future Whooshers.com poll question, please write whooshers@gmail.com.  Thanks!

Wed, October 20, 2010 | link          Comments

Do You Hear What I Hear?

I have objective pulsatile tinnitus, which is rare. My doctors can hear my pulsatile tinnitus with a stethoscope.  If your doctors can't hear your whoosh, then you have subjective pulsatile tinnitus.  There's an older post about objective vs subjective pulsatile tinnitus here.

Anyone with tinnitus, whether it's pulsatile or non-pulsatile, can relate to the frustration of hearing a sound that others can't.  It's enough to make anyone crazy sometimes.  And no matter how you try to explain the sound to others, there's simply no way for anyone to understand unless they get in your head.  That my doctors can hear mine doesn't really mean they can truly empathize with the constant whooshing I hear or the energy (brain power) it takes to ignore it on a second-to-second basis. 

BUT you might be able to find an audio file that sounds similar to your whoosh that you can play for others to hear.  Like I did. 

Last year, I found a bunch of links to audio files of different heartbeat-like sounds:

LINK 1

LINK 2

LINK 3

LINK 4

No, these aren't official whooshes or real "pulsatile tinnitus" sounds... some are heart murmurs, venous hums, bruits, and others are electronically simulated sounds.  In other words, I'm just suggesting that the sounds are alike, not that because I hear a whoosh that sounds like a hear murmur (for example) that that means my whoosh is an indication of a heart condition.  Only our doctors can truly determine a cause.  I just thought, hey, my whoosh sounds like a heartbeat without the thump.  So I did some online searching for "heartbeat sounds."

I listened to as many as I could find, and I finally found one that sounded very much like mine.  Mine sounds most like "ventricular septal defect" in Link #1.  I played that audio file for my family and friends on my computer, even adjusting the volume to coincide with the volume of my whoosh in the room. 

They were SHOCKED, I tell you!  Here, I thought I'd been describing the sound well, but there's no replacement for actually hearing the sound.  After hearing just a brief 30-seconds of whooshing via my computer, they had a whole new appreciation for what I was dealing with.  They were like, you hear THAT? ALL THE TIME?????

If you haven't already, I encourage you to listen to these files.  There are many!  See if you can find a whoosh that sounds like yours.  When you do, adjust the volume so it sounds as loud as your whoosh, and play it for others.  You may even play it for your doctor, since the pitch may be able to provide a hint as to the cause of your whoosh.  You never know.

If your whoosh sounds less like a heartbeat and more like crickets or creaking or something else, see if you can run an online search to find some audio that sounds like what you hear.  Type the description of the sounds into a search engine and see if you can find an audio file that way.  If you have trouble finding one like yours, I'd be happy to help!

And if you do find a file that sounds like yours here or elsewhere, please leave a comment and/or link below in the "Comments" section, so we can compare our whooshes.  They come in many varieties, apparently!  And if you find another file or set of files that you think I should add to my list for other whooshers, please send me an email to whooshers@gmail.com to let me know.  Soon I hope to compile all the links to files in a section of their own on this site.

Finding an audio file to play for my loved ones helped me relate to others what I'm going through.  It also helped people I know understand --even for just 30 seconds or a minute-- what I'm hearing.  Sometimes when I'm bored, I search some more to see if I can find one that sounds even more like my whoosh!  

If only I could turn off or pause the audio file in my head!!

Sat, October 16, 2010 | link          Comments

Whooshers, Unite! NYC

The very first Whooshers, Unite! event was a success.  How nice it was to meet other Whooshers this past Saturday in New York!  Stay tuned for info about similar get-togethers in the works for San Jose, California, Orlando, Florida, and the UK!  Yep, there are whooshers everywhere.  You're not alone. 

If you'd like to help organize a Whooshers event in your area, please email me at whooshers@gmail.com.

Sun, October 3, 2010 | link          Comments


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RESOURCES

NEW: Click Here to Download the PDF, "Top Ten Pulsatile Tinnitus Tips for Doctors." Review it with your GPs and ENTs!

Radiation Dose Chart - American Nuclear Society (ANS) Public Information Resources Page: Click here for an interactive dose chart for various medical diagnostic tests. A downloadable and printable version is also available on this page. Discuss with your doctors.

Find a Neurotologist: American Neurotological Society (ANS) Membership Roster 2015-2016, by state (US) - International contacts at the bottom of the page. NEW! (This PDF file will download when you click here)

Find a Neurointervention Specialist: Society of Neurointerventional Surgery (SNIS)- Click on "Physician Locator"

Find a Neuro-Ophthalmologist: The North American Neuro-Ophthalmology Society (NANOS)

Site: Neuroangio.org - Your neurovascular education and information resource. Patient Information.

UCSF Pulsatile Tinnitus Clinic

Blog: Tales From Clark Street

Presentation: "Algorithm for Evaluation of Rhythmic Tinnitus," Douglas E Mattox, MD, Patricia Hudgins, MD, Jahrsdoerfer Lecture, University of Virginia, March 25, 2010. (This link is to the abstract/summary)

Presentation: "Imaging of the Patient with Tinnitus," Mary Beth Cunnane MD, Massachusetts Eye and Ear Infirmary, Dec 2013. (NEW! Mentions Pulsatile Tinnitus and Whooshers.com. Republished with Permission.)

Article: "Imaging in Pulsatile Tinnitus: Diagnostic Pearls and Potential Pitfalls," B. S. Purohit, R. Hermans, K. Op de beeck; 1SINGAPORE/SG, 2Leuven/BE, European Society of Radiology, 2014.

Article: "Imaging In Pulsatile Tinnitus : When Should It Ring A Bell?" G. Bathla1, V. Chong; 1singapore/SG, 2Singapore/SG, European Society of Radiology, 2012."

Article: "Emma's Story," A Personal Account of Pulsatile Tinnitus, The British Tinnitus Association (BTA).

Article: "Pulsatile Tinnitus: Contemporary Assessment and Management," Aristides Sismanis, Current Opinion in Otolaryngology & Head & Neck Surgery: October 2011 - Volume 19 - Issue 5 - p 348357 doi: 10.1097/MOO.0b013e3283493fd8, Otology and neuro-otology: Edited by Myles L. Pensak.

Article: "Temporal Bone: Vascular Tinnitus," William W.M. Lo and M. Marcel Maya, Vascular, pp.1361-1374, 2003.

Article: "Diagnostic Clues in Pulsatile Tinnitus (Somatosounds)," Carlos Herraiza and José Miguel Aparicioa, Unidad de Acúfenos; Instituto ORL Antolí-Candela, Madrid, Spain; Unidad de Otorrinolaringología, Fundación Hospital Alcorcón, Madrid, Spain; Otorrinolaringología, Hospital Quirón, Madrid, Spain, Acta Otorrinolaringol Esp. 2007;58(9):426-33. This is a link to the article abstract.

Article: "How I Struggled with (PULSATILE) Tinnitus," The Story of Actor Graham Cole, Daily Mail Online, January 10, 2007.

Article: "I Got Lifesaving OP for Whooshing Thanks to US Help," David Powell, Daily Post UK, DPW West, Feb 19, 2013.

Article: "Vital Signs: An Unwelcome Ringing," by Dr. Christopher Linstrom, Discover Magazine, April 2010. (About a cured patient with pulsatile tinnitus symptoms!)

Article: "Tinnitus Highlights Poor Doctor Patient Communication," Martin Young, MBChB, FCS(SA), Diagnosis and Treatment, KevinMd.Com, November 2010.

Article: "Pulsatile Tinnitus: Recent Advances in Diagnosis," Aristides Sismanis MD, Wendy R. K. Smoker, MD, The Laryngoscope, Volume 104, Issue 6, pages 681-688, June 1994. ABSTRACT (Summary)

Article: "Neuroradiologic Assessment of Pulsatile Tinnitus," Department of Otolaryngology Head and Neck Surgery Loyola University Medical Center, Maywood, IL: Dr Kircher and Dr Leonetti; Department of Otolaryngology-Head and Neck Surgery Henry Ford Health System, Detroit, MI: Dr Standring; Presented at the Annual Meeting of the American Academy of Otolaryngology-Head Neck Surgery, Chicago, IL. Sept. 22-24, 2008. (CLICKING THIS LINK WILL DOWNLOAD THE PDF FILE)

Article: "Imaging of Tinnitus: A Review," Jane L. Weissman, MD and Barry E. Hirsch, MD, Radiology, August 2000.

Article: "Imaging in Pulsatile Tinnitus," G. Madania and S.E.J. Connor, Clinical Radiology, Volume 64, Issue 3, Pages 319-328 (March 2009).

Article: "Imaging of the Patient With Tinnitus," Mary Beth Cunnane MD, Massachusetts Eye and Ear Infirmary, December 31, 2013. (NEW! Mentions Whooshers.com and PULSATILE tinnitus as well.)

Article: "Imaging of Pulsatile Tinnitus: A Review of 74 Patients," Guner Sonmez, C Cinar Basekim, Ersin Ozturk, Atilla Gungor, Esref Kizilkaya, Clinical Imaging, Volume 31, Issue 2, Pages 102-108 (March 2007). (This is an abstract/summary-you have to pay to see the article in its entirety)

Article: "Pulsatile Tinnitus: A Review of 84 Patients," Daniel Waldvogel, Heinrich P. Mattle, Matthias Sturzenegger and Gerhard Schroth, Journal of Neurology, Volume 245, Number 3, 137-142, DOI: 10.1007/s004150050193, November 12, 1997.

Article: "Role of Angiography in the Evaluation of Patients With Pulsatile Tinnitus," Edward J. Shin, MD; Anil K. Lalwani, MD; Christopher F. Dowd, MD, Laryngoscope 110: November 2000. (PDF FILE)

Article: "Angioplasty and Stenting for Intractable Pulsatile Tinnitus Caused by Dural Venous Sinus Stenosis: A Case Series Report," Li Baomin, Shi Yongbing, and Cao Xiangyu, Dept of Neurosurgery, Chinese PLA General Hospital, Beijing, Otol Neurotol. 35.366-370. Dec 2014.

Article: "CT Angiography as a Screening Tool for Dural Arteriovenous Fistula in Patients with Pulsatile Tinnitus: Feasibility and Test Characteristics," J. Narvid, H.M. Do, N.H. Blevins and N.J. Fishbein, American Journal of Neuroradiology 32:446-453, March 2011.

Article: "Brain Dural Arteriovenous Fistula (BDAVF)," Patient Information, www.NeuroAngio.org

Article: "Usefulness of C-Arm Cone-Beam Computed Tomography in Endovascular Treatment of Traumatic Carotid Cavernous Fistulas: A Technical Case Report," Sato, Kenichi MD, PhD; Matsumoto, Yasushi MD; Kondo, Ryushi MD, PhD; Tominaga, Teiji MD, PhD, Neurosurgery: August 2010 - Volume 67 - Issue 2 - p 467470.

Article (Abstract): "A Convenient Sonographic Technique for Diagnosis of Pulsatile Tinnitus Induced by a High Jugular Bulb," The American Institute of Ultrasound in Medicine, Minoru Nakagawa, MD, Norimitsu Miyachi, MLT and Kenjiro Fujiwara, MD, Department of Neurosurgery (M.N., K.F.) and Clinical Laboratory (N.M.), Kosei General Hospital, Hiroshima, Japan, J Ultrasound Med 27:139-140 0278-4297, 2008.

Article: "Surgical Treatment of the High Jugular Bulb in Patients with Ménières Disease and Pulsatile Tinnitus," V. Couloigner, A. Bozorg Grayeli, D. Bouccara, N. Julien and O. Sterkers, European Archives of Oto-Rhino-Laryngology Volume 256, Number 5, 224-229, DOI: 10.1007/s004050050146 (ABSTRACT)

Article: "Brain AVM," (arteriovenous malformation), MayoClinic.com

Article: "Chiari Malformation," MayoClinic.com

Article: "Ménière's Disease," National Institute on Deafness and Other Communication Disorders (NIDCD)

Article: "TMJ Disorders," MayoClinic.com

Article: "Anemia," American Society of Hematology, Hemotology.org

Article: "Pseudotumor Cerebri," (also called Benign Intracranial Hypertension) MayoClinic.com

Article: "Pulse-Synchronous Tinnitus," The Intracranial Hypertension Research Foundation

Article: "Coarctation of the Aorta," MayoClinic.com

Article: "Man Cured of Hearing His Eyeballs Move," www.bbc.co.uk, July 27, 2011. Superior Canal Dehiscence Syndrome (SCDS)

Article: "Diagnosis and Cure of Venous Hum Tinnitus," Laryngoscope, Chandler JR, 93(7):892-5, July 1983.

Article: (Abstract) "Sinus Wall Reconstruction for Sigmoid Sinus Diverticulum and Dehiscence: A Standardized Surgical Procedure for a Range of Radiographic Findings," Dr. DJ Eisenman, Department of Otorhinolaryngology - Head & Neck Surgery, University of Maryland School of Medicine, Baltimore, Maryland; Otology Neurotology, 32(7):1116-9; September 2011.

Article: (Abstract) "Awake Embolization of Sigmoid Sinus Diverticulum Causing Pulsatile Tinnitus: Simultaneous Confirmative Diagnosis and Treatment," Park YH, Kwon HJ, Department of Otolaryngology-Head and Neck Surgery, Chungnam National University School of Medicine, Daejeon, Republic of Korea, Interv Neuroradiol. 2011 Sep;17(3):376-9. Epub 2011 Oct 17. (NEW!)

Article: "A New Therapeutic Procedure for Treatment of Objective Venous Pulsatile Tinnitus," Sanchez TG, Murao M, Medeiros HRT, Kii M, Bento RF, Caldas JG, et al. Int Tinnitus J. 2002;8(1):54-57.

Article: "Glomus Tympanicum," The New England Journal of Medicine, Volume 362:e66, Number 22, June 3, 2010.

Article: "Resolution of Pulsatile Tinnitus Following an Upper Mediastinal Lymph Node Resection," Wang YZ, Boudreaux JP, Campeau RJ, Woltering EA, South Med J. 2010 Apr;103(4):374-7.

Article: (Abstract) "Dissection of the Internal Carotid Artery After SCUBA-Diving: A Case Report and Review of the Literature," Franz Hafner, MD,* Thomas Gary, MD,* Froehlich Harald, MD,* Ernst Pilger,* Reinhard Groell, PD,w and Marianne, Brodmann* "Neurologist. 17(2):79-82, March 2011. (NEW!)

Article: "Carotid-Cavernous Sinus Fistula," Bobby S. Korn, M.D., Ph.D., and Kang Zhang, M.D., Ph.D., N Engl J Med 2011; 364:e15, February, 24, 2011. (WARNING: GRAPHIC IMAGES)

Article: "Pulsatile Tinnitus Cured by Mastoidectomy," Duvillard C, Ballester M, Redon E, Romanet P., Department of Otolaryngology-Head and Neck Surgery, Hôpital Général, Dijon, France, Ann Otol Rhinol Laryngol, September 2004.

Article: "Pulsatile Tinnitus: A Symptom of Chronic Subclavian Artery Occlusion," Marcio Francisco Lehmann, Charbel Mounayer, Goetz Benndorf, Michel Piotin, and Jacques Moret, AJNR Am J Neuroradiol 26:19601963, September 2005 (PDF).

Article: "Carotid Endarterectomy Relieves Pulsatile Tinnitus Associated with Severe Ipsilateral Carotid Stenosis," J Kirkby-Bott, H.H Gibbs, European Journal of Vascular & Endovascular Surgery, Volume 27, Issue 6, Pages 651-653, June 2004.

Article: "MR Angiography Imaging of Absence Vertebral Artery Causing of Pulsatile Tinnitus: A Case Report," *Mehmet Cudi Tuncer; **Yekta Helbest Akgül & *Özlen Karabulut,* Department of Anatomy, Faculty of Dicle University, 21280, Diyarbak¹r, Turkey.** Department of Otorhinolaryngology, Özel Diyarbakr Hospital, 21100, Diyarbakr, Turkey, International Journal of Morphology, v.28 n.2 Temuco Jun. 2010."

Article: "Endovascular Treatment of Sigmoid Sinus Aneurysm Presenting as Devastating Pulsatile Tinnitus. A Case Report and Review of Literature." Mehanna R, Shaltoni H. Morsi H, Mawad M., Interv Neuroradiol. 2010 Dec;16(4):451-4. Epub 2010 Dec 17.

"Pulsatile Tinnitus Caused by an Aneurysm of the Transverse-Sigmoid Sinus: A New Case Report and Review of Literature," Lenck S, Mosimann PJ, Labeyrie MA, Houdart E., Department of Neuroradiology, hôpital Lariboisière, 2, rue Ambroise-Paré, 75010 Paris, France, J Neuroradiol. 2012 Oct;39(4):276-9. doi: 10.1016/j.neurad.2012.02.001. Epub 2012 Sep 29. (NEW!)

Article: "Intractable Tinnitus and Sensorineural Deafness Cured by Surgical Correction of Coarctation of Aorta," S. Rathinam, A.M. Pettigrew, J.C.S. Pollack, Interactive Cardiovascular and Thoracic Surgery 3:431-433 (2004).

Article: "Pulsatile Tinnitus," Don McFerran FRCS Consultant Otolaryngologist Essex County Hospital, Colchester, British Tinnitus Association, October 2007.

Article: "Pulsatile Tinnitus and Dural Arteriovenous Malformation (Dural AVM)," G. A. J. Morrison, The Journal of Laryngology & Otology (1989), 103:1073-1075 Cambridge University Press (ABSTRACT).

Article: "Medical Mystery: Giving Birth Didn't Ease a Woman's Dangerous Hypertenstion," Sandra G. Boodman, The Washington Post, October 17, 2011.

Article: "That Noise Wasn't Just Tinnitus," Sandra G. Boodman, Special to The Washington Post, July 7, 2009

Article: "What's That Noise In Her?" H. Lee Kagan, Discovery Magazine, January 2006. (About a patient with arteriovenous malformation (AVM) and her doctor whose patience and persistence paid off).

Article: "The 'Rare' Disease That Isn't," Thomas M. Burton, The Wall Street Journal, June 27, 2009

Article: "Diseases and Conditions/ Fibromuscular Dysplasia (FMD)," Cleveland Clinic. Lists symptoms, details, treatments, and resources including Whooshers.com.

Article: Unraveling Pulsatile Tinnitus in FMD: A Report of the United States Registry For Fibromuscular Dysplasia."

Video: "A Rare Disease That May Be Underdiagnosed," Thomas M. Burton, June 26, 2009 (Hear an example of a whooshing sound in this short video)

Whooshers.com Pulsatile Tinnitus Sounds (Real Ones Recorded by Real Whooshers!)

Audio: Having trouble describing the sound you hear to others? Listen to this collection of sounds that whoosh and see if you can find a match to yours! Demonstrations: Heart Sounds & Murmurs, from the University of Washington Department of Medicine

Audio: FREE White Noise from White Noise MP3s.com

Audio: SimplyNoise.com

Whooshers.com Review: SleepPhones- Soft, comfortable headphones to help mask the whoosh for a good night's sleep.

Click Here for the International Association for Suicide Prevention (IASP)

Replace "ringing" with "whooshing," and here it is: our theme song.