HOMENews & PressWhooshers, Unite! NYC Winter 2018!Pulsatile Tinnitus Research (NEW!)Cured WhooshersPulsatile Tinnitus SoundsA Note To The Medical CommunityUpcoming EventsWhooshers T-ShirtsWhoosher WednesdaysPetition for a Pulsatile Tinnitus Diagnosis Code - WE SUCCEEDED!Poll ResultsMap Your WhooshArchives/Previous PostsAbout This SiteContact Us

Whoosh [hwoosh, hwoosh, woosh, woosh] noun 1. a loud, rushing noise, as of air or water: a great whoosh as the door opened. verb (used without object) 2. to move swiftly with a gushing or hissing noise: gusts of wind whooshing through the trees. verb (used with object) 3. to move (an object, a person, etc.) with a whooshing motion or sound: The storm whooshed the waves over the road. Also, woosh. Origin: 1840-1850; imit.

Pulsatile tinnitus is a rhythmical noise that is synchronous with the patient's heartbeat.

Archive Newer | Older

Baby Steps Toward a Cure, by Blondie from Tales From Clark Street

It’s been three years (almost to the day) since I went to have a CT Angiogram for my ear whooshing. I was given the dreaded news: I was “unremarkable.” For that story, click here.

I’m amazed when I think back to that day—when the whooshing was so new and foreign and scary as hell. It had been a year since the whoosh began. I felt defeated. And so very sad.

Flash forward to today—March 2010. I’ve been whooshing for FOUR YEARS?? Seriously?? Yes, yes I have. And once again, I’ve decided to try to do something about it.

About six months ago, I called the head of vascular surgery at a nearby hospital. Since the whooshing is in time with my heart, I thought the vascular route was a good way to go. Arteries? Veins? CHECK! Whoosh, whoosh, whoosh!

I sent a slew of emails to this kind surgeon and he agreed to take me on. After trying to get my CT results from Chicago (waiting… waiting… months go by… machines…push this button), I gave up and decided to start fresh. Today, I called to make the appointment. It will be Monday, April 5th. Wish me luck.

This time, I’m having an MRI. I’ve been told this will take an hour to an hour and a half, so I’m getting sedation. (Pauses to freak out. Deep breaths.) The MRI will be a big tube that I lie in VERY STILL while magnets snap photos of my head. The CT Angiogram was a shot of dye in my arm and 10 minutes of a half-tube taking pictures of my head. I’m not a doctor, so I have NO idea what the difference is in these tests. What I do know? I have a $3,000 deductible. (winces)

But whatever.

I’m tired of whooshing. It’s always there. It makes me crazy. If there is someone willing to sit down and really take a look at my cranium, I’m going to do it. With a payment plan.

This morning, I’ve talked to two different women at the hospital with a third call to come from the sedation woman. Everyone I’ve talked to so far has been SO NICE. Such a difference from the Evil Chicago Doctor who kicked me out after 5 minutes. As with all things medical, it’s all about the doctor. If you can find a doctor who is willing to really listen, be curious, daring, and understanding, then you’re golden. I heard wonderful things about this doctor from the women who set me up with the appointment.

Once again, I’m going to go ahead and stand out on that great cliff called Hope. Care to join me?

Blondie

Read more Whooshers.com posts by Blondie:

"Tips for Battling the Whoosh"

"To Test or Not to Test"

and visit her blog, Tales from Clark Street.

Tue, March 30, 2010 | link          Comments

Weight & Whooshing

This site has been up for about nine months now, and many of you have written whooshers@gmail.com to tell me about your experiences with pulsatile tinnitus: how it started, when you decided to finally see a doctor, what doctors suggested, etc. 

Many of you have shared your doctors' suggestion that weight may play in a factor in pulsatile tinnitus.  More precisely, the suggestions seem to include the following: sudden weight loss or weight gain could possibly play a role, as can being generally overweight. 

Since the launch of this site, I've been asked many times about possible cures and treatments for pulsatile tinnitus. I'm just a patient, like all of you, so I don't know the answers.  We just share our stories and learn from each other. 

Many of you have written to me to tell me that you DID lose weight at the suggestion of your doctor and, while you may feel better and healthier, the weight loss had no effect on your pulsatile tinnitus. 

I haven't heard from anyone that losing or gaining weight changed their pulsatile tinnitus, for better or worse.

The only exception to this might be when I've heard from pregnant women.  Pulsatile tinnitus affects some pregnant women but typically disappears after birth.  But since not ALL preganant women experience pulsatile tinnitus, I'm not convinced that it's a weight issue.  I just don't know.  There is an older Whooshers.com post about pulsatile tinnitus and pregnancy here.  

Of course, it's possible that once someone doesn't experience the whooshing anymore, they never visit a site like Whooshers again or discuss their whooshing past with anyone.  But I really would like to know: has losing weight made anyone's pulsatile tinnitus go away?  Do doctors have proof or studies that show results? 

If you have a heart attack because your cholesterol is too high, your doctor has an obligation to tell you to eat better, exercise more, etc.  But if doctors don't KNOW that losing weight will make the pulsatile tinnitus go away, wouldn't it be better if they say, okay, try to lose some weight AND while you're trying that let's do some more tests and try X? 

Putting aside for a moment the difficulty of living with pulsatile tinnitus, can we talk about the elephant in the room?  When you finally make an appointment with a doctor to examine your whoosh, and the doctor tells you that you need to lose weight, you're likely to feel ashamed, mad at yourself and just plain sad.  Most of us who need to lose weight KNOW we need to lose weight.

Plus, some of us gain weight as a direct result of the pulsatile tinnitus.  Why?  Because when our heart rate increases, the whooshing gets faster and louder.  MUCH louder.  It feels like our head may explode.  Even as irrational as that may be, the feeling inside our heads when this happens simply can not be ignored. We don't like it.  If banging your head against the wall hurts, then you stop banging your head against a wall.  Exercising, to some of us, is like banging our head against the wall.

Look, if losing weight will stop the whooshing, I can't think of a better motivation to drop the pounds.  My concern is, some very distraught whooshers are being told that their weight is the issue here, and I haven't really seen or heard any evidence that losing weight helps relieve the whooshing. So what we have is a situation where a whoosher, already distressed from the effects of pulsatile tinnitus, has to deal with the shame and struggle of losing weight (maybe something that s/he has already tried to do in the past), and the feeling that pulsatile tinnitus is all their fault.  When it's not.  

I would love to have a larger discussion on this issue, with pulsatile tinnitus sufferers who have been told to lose weight, and DID.  Did losing weight affect your whoosh?  Any thoughts?  

WhooshEr

Thu, March 25, 2010 | link          Comments

Poll Results: I've had pulsatile tinnitus for ...

40%     One to six months

23%     Two to five years

12%     Over five years

9%       One week or less

9%       Six months to one year

7%       One to two years

Total Votes: 43

Thanks for voting, and please don't forget to answer the latest Whooshers.com poll!

Sat, March 20, 2010 | link          Comments

When The Tinnitus Patient Is A Doctor

Tinnitus - A Patient's Perspective is an article written in 2003 by Dr. Stephen M. Nagler for the medical journal, Otolaryngologic Clinics of North America.

Dr. Nagler, a tinnitus sufferer, describes how the onset of tinnitus affected his career and family, and how dealing with tinnitus over time changed his identity as a man, doctor and surgeon.  He experiences non-pulsatile tinnitus, but sufferers of pulsatile tinnitus can certainly identify with the debilitating effects, frustrations and fears he describes.

For his audience of colleagues in the medical field, he nicely sums up just what each of us is looking for: compassionate care.  All tinnitus sufferers deserve that.  

Take a few minutes to read the piece.  I think you'll be glad you did.

Dr. Nagler, if you're reading, thank you!  

Note: the link takes you to the article posted on Mr. Nagler's Web site; I'm not sure whether he still manages that site.  

Fri, March 12, 2010 | link          Comments

Poll Results: How Do YOU Pronounce "Tinnitus?"
 
36%   “tin’-i-tus” (9 votes)
 
44%   “tin-NIGHT'-us” (11 votes)
 
20%    Both Ways (5 votes)
 
0%      Other: (0 votes)
 
Total Votes: 25
 
Sat, March 6, 2010 | link          Comments


Archive Newer | Older


Whooshers.com

Promote Your Page Too

Follow Whooshers
         on Twitter

RESOURCES

NEW: Click Here to Download the PDF, "Top Ten Pulsatile Tinnitus Tips for Doctors." Review it with your GPs and ENTs!

Radiation Dose Chart - American Nuclear Society (ANS) Public Information Resources Page: Click here for an interactive dose chart for various medical diagnostic tests. A downloadable and printable version is also available on this page. Discuss with your doctors.

Find a Neurotologist: American Neurotological Society (ANS) Membership Roster

Find a Neurointervention Specialist: Society of Neurointerventional Surgery (SNIS)- Click on "Physician Locator"

Find a Neuro-Ophthalmologist: The North American Neuro-Ophthalmology Society (NANOS)

Site: Neuroangio.org - Your neurovascular education and information resource. Patient Information.

UCSF Pulsatile Tinnitus Clinic

Blog: Tales From Clark Street

Presentation: "Algorithm for Evaluation of Rhythmic Tinnitus," Douglas E Mattox, MD, Patricia Hudgins, MD, Jahrsdoerfer Lecture, University of Virginia, March 25, 2010. (This link is to the abstract/summary)

Presentation: "Imaging of the Patient with Tinnitus," Mary Beth Cunnane MD, Massachusetts Eye and Ear Infirmary, Dec 2013. (NEW! Mentions Pulsatile Tinnitus and Whooshers.com. Republished with Permission.)

Article: "Imaging in Pulsatile Tinnitus: Diagnostic Pearls and Potential Pitfalls," B. S. Purohit, R. Hermans, K. Op de beeck; 1SINGAPORE/SG, 2Leuven/BE, European Society of Radiology, 2014.

Article: "Imaging In Pulsatile Tinnitus : When Should It Ring A Bell?" G. Bathla1, V. Chong; 1singapore/SG, 2Singapore/SG, European Society of Radiology, 2012."

Article: "Emma's Story," A Personal Account of Pulsatile Tinnitus, The British Tinnitus Association (BTA).

Article: "Pulsatile Tinnitus: Contemporary Assessment and Management," Aristides Sismanis, Current Opinion in Otolaryngology & Head & Neck Surgery: October 2011 - Volume 19 - Issue 5 - p 348357 doi: 10.1097/MOO.0b013e3283493fd8, Otology and neuro-otology: Edited by Myles L. Pensak.

Article: "Temporal Bone: Vascular Tinnitus," William W.M. Lo and M. Marcel Maya, Vascular, pp.1361-1374, 2003.

Article: "Diagnostic Clues in Pulsatile Tinnitus (Somatosounds)," Carlos Herraiza and José Miguel Aparicioa, Unidad de Acúfenos; Instituto ORL Antolí-Candela, Madrid, Spain; Unidad de Otorrinolaringología, Fundación Hospital Alcorcón, Madrid, Spain; Otorrinolaringología, Hospital Quirón, Madrid, Spain, Acta Otorrinolaringol Esp. 2007;58(9):426-33. This is a link to the article abstract.

Article: "How I Struggled with (PULSATILE) Tinnitus," The Story of Actor Graham Cole, Daily Mail Online, January 10, 2007.

Article: "I Got Lifesaving OP for Whooshing Thanks to US Help," David Powell, Daily Post UK, DPW West, Feb 19, 2013.

Article: "Vital Signs: An Unwelcome Ringing," by Dr. Christopher Linstrom, Discover Magazine, April 2010. (About a cured patient with pulsatile tinnitus symptoms!)

Article: "Tinnitus Highlights Poor Doctor Patient Communication," Martin Young, MBChB, FCS(SA), Diagnosis and Treatment, KevinMd.Com, November 2010.

Article: "Pulsatile Tinnitus: Recent Advances in Diagnosis," Aristides Sismanis MD, Wendy R. K. Smoker, MD, The Laryngoscope, Volume 104, Issue 6, pages 681-688, June 1994. ABSTRACT (Summary)

Article: "Neuroradiologic Assessment of Pulsatile Tinnitus," Department of Otolaryngology Head and Neck Surgery Loyola University Medical Center, Maywood, IL: Dr Kircher and Dr Leonetti; Department of Otolaryngology-Head and Neck Surgery Henry Ford Health System, Detroit, MI: Dr Standring; Presented at the Annual Meeting of the American Academy of Otolaryngology-Head Neck Surgery, Chicago, IL. Sept. 22-24, 2008. (CLICKING THIS LINK WILL DOWNLOAD THE PDF FILE)

Article: "Imaging of Tinnitus: A Review," Jane L. Weissman, MD and Barry E. Hirsch, MD, Radiology, August 2000.

Article: "Imaging in Pulsatile Tinnitus," G. Madania and S.E.J. Connor, Clinical Radiology, Volume 64, Issue 3, Pages 319-328 (March 2009).

Article: "Imaging of the Patient With Tinnitus," Mary Beth Cunnane MD, Massachusetts Eye and Ear Infirmary, December 31, 2013. (NEW! Mentions Whooshers.com and PULSATILE tinnitus as well.)

Article: "Imaging of Pulsatile Tinnitus: A Review of 74 Patients," Guner Sonmez, C Cinar Basekim, Ersin Ozturk, Atilla Gungor, Esref Kizilkaya, Clinical Imaging, Volume 31, Issue 2, Pages 102-108 (March 2007). (This is an abstract/summary-you have to pay to see the article in its entirety)

Article: "Pulsatile Tinnitus: A Review of 84 Patients," Daniel Waldvogel, Heinrich P. Mattle, Matthias Sturzenegger and Gerhard Schroth, Journal of Neurology, Volume 245, Number 3, 137-142, DOI: 10.1007/s004150050193, November 12, 1997.

Article: "Role of Angiography in the Evaluation of Patients With Pulsatile Tinnitus," Edward J. Shin, MD; Anil K. Lalwani, MD; Christopher F. Dowd, MD, Laryngoscope 110: November 2000. (PDF FILE)

Article: "Angioplasty and Stenting for Intractable Pulsatile Tinnitus Caused by Dural Venous Sinus Stenosis: A Case Series Report," Li Baomin, Shi Yongbing, and Cao Xiangyu, Dept of Neurosurgery, Chinese PLA General Hospital, Beijing, Otol Neurotol. 35.366-370. Dec 2014.

Article: "CT Angiography as a Screening Tool for Dural Arteriovenous Fistula in Patients with Pulsatile Tinnitus: Feasibility and Test Characteristics," J. Narvid, H.M. Do, N.H. Blevins and N.J. Fishbein, American Journal of Neuroradiology 32:446-453, March 2011.

Article: "Brain Dural Arteriovenous Fistula (BDAVF)," Patient Information, www.NeuroAngio.org

Article: "Usefulness of C-Arm Cone-Beam Computed Tomography in Endovascular Treatment of Traumatic Carotid Cavernous Fistulas: A Technical Case Report," Sato, Kenichi MD, PhD; Matsumoto, Yasushi MD; Kondo, Ryushi MD, PhD; Tominaga, Teiji MD, PhD, Neurosurgery: August 2010 - Volume 67 - Issue 2 - p 467470.

Article (Abstract): "A Convenient Sonographic Technique for Diagnosis of Pulsatile Tinnitus Induced by a High Jugular Bulb," The American Institute of Ultrasound in Medicine, Minoru Nakagawa, MD, Norimitsu Miyachi, MLT and Kenjiro Fujiwara, MD, Department of Neurosurgery (M.N., K.F.) and Clinical Laboratory (N.M.), Kosei General Hospital, Hiroshima, Japan, J Ultrasound Med 27:139-140 0278-4297, 2008.

Article: "Surgical Treatment of the High Jugular Bulb in Patients with Ménières Disease and Pulsatile Tinnitus," V. Couloigner, A. Bozorg Grayeli, D. Bouccara, N. Julien and O. Sterkers, European Archives of Oto-Rhino-Laryngology Volume 256, Number 5, 224-229, DOI: 10.1007/s004050050146 (ABSTRACT)

Article: "Brain AVM," (arteriovenous malformation), MayoClinic.com

Article: "Chiari Malformation," MayoClinic.com

Article: "Ménière's Disease," National Institute on Deafness and Other Communication Disorders (NIDCD)

Article: "TMJ Disorders," MayoClinic.com

Article: "Anemia," American Society of Hematology, Hemotology.org

Article: "Pseudotumor Cerebri," (also called Benign Intracranial Hypertension) MayoClinic.com

Article: "Pulse-Synchronous Tinnitus," The Intracranial Hypertension Research Foundation

Article: "Coarctation of the Aorta," MayoClinic.com

Article: "Man Cured of Hearing His Eyeballs Move," www.bbc.co.uk, July 27, 2011. Superior Canal Dehiscence Syndrome (SCDS)

Article: "Diagnosis and Cure of Venous Hum Tinnitus," Laryngoscope, Chandler JR, 93(7):892-5, July 1983.

Article: (Abstract) "Sinus Wall Reconstruction for Sigmoid Sinus Diverticulum and Dehiscence: A Standardized Surgical Procedure for a Range of Radiographic Findings," Dr. DJ Eisenman, Department of Otorhinolaryngology - Head & Neck Surgery, University of Maryland School of Medicine, Baltimore, Maryland; Otology Neurotology, 32(7):1116-9; September 2011.

Article: (Abstract) "Awake Embolization of Sigmoid Sinus Diverticulum Causing Pulsatile Tinnitus: Simultaneous Confirmative Diagnosis and Treatment," Park YH, Kwon HJ, Department of Otolaryngology-Head and Neck Surgery, Chungnam National University School of Medicine, Daejeon, Republic of Korea, Interv Neuroradiol. 2011 Sep;17(3):376-9. Epub 2011 Oct 17. (NEW!)

Article: "A New Therapeutic Procedure for Treatment of Objective Venous Pulsatile Tinnitus," Sanchez TG, Murao M, Medeiros HRT, Kii M, Bento RF, Caldas JG, et al. Int Tinnitus J. 2002;8(1):54-57.

Article: "Glomus Tympanicum," The New England Journal of Medicine, Volume 362:e66, Number 22, June 3, 2010.

Article: "Resolution of Pulsatile Tinnitus Following an Upper Mediastinal Lymph Node Resection," Wang YZ, Boudreaux JP, Campeau RJ, Woltering EA, South Med J. 2010 Apr;103(4):374-7.

Article: (Abstract) "Dissection of the Internal Carotid Artery After SCUBA-Diving: A Case Report and Review of the Literature," Franz Hafner, MD,* Thomas Gary, MD,* Froehlich Harald, MD,* Ernst Pilger,* Reinhard Groell, PD,w and Marianne, Brodmann* "Neurologist. 17(2):79-82, March 2011. (NEW!)

Article: "Carotid-Cavernous Sinus Fistula," Bobby S. Korn, M.D., Ph.D., and Kang Zhang, M.D., Ph.D., N Engl J Med 2011; 364:e15, February, 24, 2011. (WARNING: GRAPHIC IMAGES)

Article: "Pulsatile Tinnitus Cured by Mastoidectomy," Duvillard C, Ballester M, Redon E, Romanet P., Department of Otolaryngology-Head and Neck Surgery, Hôpital Général, Dijon, France, Ann Otol Rhinol Laryngol, September 2004.

Article: "Pulsatile Tinnitus: A Symptom of Chronic Subclavian Artery Occlusion," Marcio Francisco Lehmann, Charbel Mounayer, Goetz Benndorf, Michel Piotin, and Jacques Moret, AJNR Am J Neuroradiol 26:19601963, September 2005 (PDF).

Article: "Carotid Endarterectomy Relieves Pulsatile Tinnitus Associated with Severe Ipsilateral Carotid Stenosis," J Kirkby-Bott, H.H Gibbs, European Journal of Vascular & Endovascular Surgery, Volume 27, Issue 6, Pages 651-653, June 2004.

Article: "MR Angiography Imaging of Absence Vertebral Artery Causing of Pulsatile Tinnitus: A Case Report," *Mehmet Cudi Tuncer; **Yekta Helbest Akgül & *Özlen Karabulut,* Department of Anatomy, Faculty of Dicle University, 21280, Diyarbak¹r, Turkey.** Department of Otorhinolaryngology, Özel Diyarbakr Hospital, 21100, Diyarbakr, Turkey, International Journal of Morphology, v.28 n.2 Temuco Jun. 2010."

Article: "Endovascular Treatment of Sigmoid Sinus Aneurysm Presenting as Devastating Pulsatile Tinnitus. A Case Report and Review of Literature." Mehanna R, Shaltoni H. Morsi H, Mawad M., Interv Neuroradiol. 2010 Dec;16(4):451-4. Epub 2010 Dec 17.

"Pulsatile Tinnitus Caused by an Aneurysm of the Transverse-Sigmoid Sinus: A New Case Report and Review of Literature," Lenck S, Mosimann PJ, Labeyrie MA, Houdart E., Department of Neuroradiology, hôpital Lariboisière, 2, rue Ambroise-Paré, 75010 Paris, France, J Neuroradiol. 2012 Oct;39(4):276-9. doi: 10.1016/j.neurad.2012.02.001. Epub 2012 Sep 29. (NEW!)

Article: "Intractable Tinnitus and Sensorineural Deafness Cured by Surgical Correction of Coarctation of Aorta," S. Rathinam, A.M. Pettigrew, J.C.S. Pollack, Interactive Cardiovascular and Thoracic Surgery 3:431-433 (2004).

Article: "Pulsatile Tinnitus," Don McFerran FRCS Consultant Otolaryngologist Essex County Hospital, Colchester, British Tinnitus Association, October 2007.

Article: "Pulsatile Tinnitus and Dural Arteriovenous Malformation (Dural AVM)," G. A. J. Morrison, The Journal of Laryngology & Otology (1989), 103:1073-1075 Cambridge University Press (ABSTRACT).

Article: "Medical Mystery: Giving Birth Didn't Ease a Woman's Dangerous Hypertenstion," Sandra G. Boodman, The Washington Post, October 17, 2011.

Article: "That Noise Wasn't Just Tinnitus," Sandra G. Boodman, Special to The Washington Post, July 7, 2009

Article: "What's That Noise In Her?" H. Lee Kagan, Discovery Magazine, January 2006. (About a patient with arteriovenous malformation (AVM) and her doctor whose patience and persistence paid off).

Article: "The 'Rare' Disease That Isn't," Thomas M. Burton, The Wall Street Journal, June 27, 2009

Article: "Diseases and Conditions/ Fibromuscular Dysplasia (FMD)," Cleveland Clinic. Lists symptoms, details, treatments, and resources including Whooshers.com.

Article: Unraveling Pulsatile Tinnitus in FMD: A Report of the United States Registry For Fibromuscular Dysplasia."

Video: "A Rare Disease That May Be Underdiagnosed," Thomas M. Burton, June 26, 2009 (Hear an example of a whooshing sound in this short video)

Whooshers.com Pulsatile Tinnitus Sounds (Real Ones Recorded by Real Whooshers!)

Audio: Having trouble describing the sound you hear to others? Listen to this collection of sounds that whoosh and see if you can find a match to yours! Demonstrations: Heart Sounds & Murmurs, from the University of Washington Department of Medicine

Audio: FREE White Noise from White Noise MP3s.com

Audio: SimplyNoise.com

Whooshers.com Review: SleepPhones- Soft, comfortable headphones to help mask the whoosh for a good night's sleep.

Click Here for the International Association for Suicide Prevention (IASP)

Replace "ringing" with "whooshing," and here it is: our theme song.