Superior Semicircular Canal Dehiscence (SSCD) - Rare or Rarely Diagnosed?
Sat, June 20, 2015 | link
A recent story published by HuffingtonPost.co.UK explores the inspiring story of nurse-to-be Beth Rye, a 24-year-old woman
diagnosed with Superior Semicircular Canal Dehiscence (SSCD).
Pulsatile tinnitus is a common symptom of SSCD.
seen a number of high profile SSCD stories in recent years. See the Cured Whooshers page for others. Other symptoms beyond pulsatile tinnitus sometimes include vertigo, "bouncy" eyes
(as described by the patient in the story), an increased sense of one's voice (autophony) and hypersensitivity to sounds like
dishes clanking in the sink.
The piece indicates that the patient and her symptoms were initially and consistently
disregarded. She was told to "live with it" and doctors prescribed a nasal spray. She was persistent,
however, and after 10 months she received a proper diagnosis. Another example of being your best advocate! Now,
with that diagnosis, she hopes to receive treatment.
A lot more is known now about SSCD than even a few years
ago, so we hope this patient finds treatment and soon.
For more information on SSCD click here.
To read the story, see:
"Woman Left Bedbound By Tiny Hole In Ear Reveals How It's 'Impossible' To Lead An Ordinary Life," Natasha Hinde, June 12, 2015.