Whooshers.com is a big supporter of all who raise awareness for intracranial hypertension (IH), a condition that impacts
many, many whooshers and doesn't get enough attention. Since September is IH Awareness Month, let's chat a minute about
IH, shall we?
According to the Intracranial Hypertension Research Foundation (IHRF), IH is the term for neurological disorders that result when cerebrospinal fluid (CSF) in the skull is too high. Whooshing
is sometimes the first and sole symptom of IH. There are different types of IH: Acute/Chronic; Idiopathic/Secondary - and
different people with even the very same diagnosis may experience IH very differently.
Like a lot of causes of pulsatile
tinnitus (and not unlike the symptom itself), IH has a bit of a PR problem. Not enough people know much about it, and medical
professionals aren't necessarily trained to detect its symptoms. It's one of those conditions that everyone has said
for years is "rare," but really, it may just be "rarely diagnosed." To make it more confusing,
IH has had a number of different names, including pseudotumor cerebri and benign intracranial hypertension.
This book was purchased in 2003 - even its title is outdated now! More organizations and support groups have since
been born and there are a lot of wonderful people raising awareness and support, for the condition and for the people enduring
the symptoms and finding their way to and through treatment.
But there's a lot left to be learned and shared. We've
heard from a number of whooshers who were diagnosed with IH, and while the term "cure" is unfortunately not a common
one associated with IH - not yet - the good news is once identified it is possible to find support and treatment. We've
posted quite a few Whoosher-IH stories, including this one. I encourage more IHers to share their stories with us.
If you don't know a lot about IH, one of the best
things you can do is read about IH Myths. For example, did you know that IH impacts MEN as well as women? It's true. Did you know that you don't need
to experience headaches or have vision problems to have IH? That's true, too. Very often, even if doctors are familiar
with IH, a patient will fall between the cracks because the myths - oh, the myths - keep many patients from receiving a proper
In its "Introduction," the (albeit outdated) book quotes Dr. C. Everett Koop, the former
U.S. Surgeon General. He said, "The best prescription is knowledge." I couldn't agree more.
more about IH! You'll be glad you did!