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This page lists known research programs that study and support the pulsatile tinnitus community.
 
For more information about the programs and donating funds, see the links below.  

UCSF Pulsatile Tinnitus Clinic Research Survey

If you are a whoosher 18 years old or older, you are encouraged to complete this survey.  It will take approximately ten minutes.  

From the survey page:

We are conducting this survey to better understand the impact that pulsatile tinnitus has on people's lives in terms of depression, anxiety, and function. We hope that this information will help guide us in terms of providing better care for our patients and raising awareness of pulsatile tinnitus as an illness.   

 

New Clinical Trial: Venous Sinus Stenting to Treat Intractable Pulsatile Tinnitus Caused by Venous Sinus Stenosis

The FDA and the Weill Cornell Institutional Review Board (IRB) have approved a new clinical trial for pulsatile tinnitus at Weill Cornell Medical College in New York City.  The study will specifically address cases of stenosis (i.e. narrowing) of veins near the brain, most commonly the transverse and sigmoid sinuses.  

Read more information about the new clinical trial here

See additional info about the "Venous Sinus Stenting to Treat Intractable Pulsatile Tinnitus Caused by Venous Sinus Stenosis" study on www.clinicaltrials.gov.

And be sure to review (with your doctors!) the Cured Whooshers page for medical reports and personal stories related to venous sinus stenosis (see transverse sinus stenosis or sigmoid sinus stenosis).  

 

The Otology Research Fund

Maintained by the the Department of Otorhinolaryngology - Head and Neck Surgery at the University of Maryland School of Medicine

"Gifts to the Otology Research Fund help support research in a variety of ear-related subjects, which include genetic hearing loss, including that associated with visual and balance disorders, noise-induced hearing loss, pulsatile tinnitus and non-rhythmic tinnitus. Ongoing clinical and translational studies for pulsatile tinnitus include research directed towards understanding sigmoid sinus wall anomalies, idiopathic intracranial hypertension, transverse sinus stenosis, and other venous causes of pulsatile tinnitus. These include developing models for reproduction and modulation of pulsatile tinnitus, radiographic imaging techniques, and surgical interventions.

The donation page allows you to specify a particular area towards which you would like your donation allocated."

WHOOSHERS: BE SURE TO SPECIFY "PULSATILE TINNITUS" when you donate!

 

Contact whooshers@gmail.com to have others added to this page.